Stuck on Skip: The Patterns of Life

My son absolutely loves letters, shapes, numbers, and colors. He can do different activities, but spends majority of his day focusing on the things that he loves most. He loves them because he understands them and they are always constant. A q is always a q, and b always comes after a. One plus one always equals two, and a triangle will always have three sides. Or in his case, his favorite shape, a dodecahedron, will always have twenty sides. A dodecawhat? Just trust me and stay with me here.

My son spends most of his day studying these things and lining them up. In fact, he lines everything up. I often even know he was in a room because of the telltale evidence he leaves behind. For example, the other day I knew he went into my bathroom because when I went in there, there was a line of tampons on the floor organized by color. He doesn’t have all the order that he needs in life so he creates it, and I’m pretty sure he would do this all day long if I would let him. Of course the one exception is that he likes the couch throw pillows on the floor and I like them lined up on the couch. Can’t figure that one out!

Happy family on meadow at summer sunset

The point is that every day I feel like we often do the same things, over and over. I often even hear the same phrases and words over and over again. For me, this is the norm, and I am happy to live it, but sometimes I can’t help but feel like his life and mine are stuck on skip. Like a record that just can’t get over that scratch, or for any youngsters out there, a DVD that is skipping back to the same part. Or for even younger folks, buying a movie on apple tv that won’t play through. Isn’t it amazing that no matter how far we advance as a society, our issues are still the same?

Anyway, every day is similar and it is a good thing in our house when we find something new to line up or perhaps even change the pattern, because that is change! In fact, my son is so creative in creating new patterns that when family was recently over we all felt like we were doing mind puzzles trying to find his reason and new pattern choice. I see it like he is leaving mini works of art all throughout the home. If you could see some of his more intricate letter designs I doubt you would describe it any other way. I often call him a letterologist  or letter ninja if there were such a thing.  

Raising A Superhero

Superhero: a fictional hero having extraordinary or superhuman powers; an exceptionally skillful or successful person – Merriam-Webster Dictionary

When the time came for me to have children, there were a lot of options and situations that I knew I needed to be prepared for.  Though I have to admit, majority of my thoughts were about choosing nursery bedding and baby names.  Would I use cloth diapers or regular?  What stroller and diaper bag should I get?   While many things came to mind, it had never occurred to me that I needed to prepare myself to raise a real life superhero.Boy plays super hero at sunset.

When I see my son, I don’t just see a child with Autism that needs help to be part of the world.  I see a superhero who can teach me and others far more about the world than I could ever teach him.

I see the most amazing, dedicated, triumphant child who has a unique skill set unlike any other.  I see a boy with the truest, honest, kindest heart that I’ve ever seen.  I see a boy with great passion for life and extraordinary interests.  He is a person with a special connection to extraordinary individuals and a trusting heart that doesn’t judge.  I see so many magnificent qualities in him, but the reality is that it is not all cake and rainbows.

The hardest part about raising a superhero is watching the battles that they encounter daily.

Here’s to you, Mom

Moms come in many forms. I happen to be a single mom, a stay at home mom, a work from home mom, an autism mom, and so much more. Honestly I don’t care what kind of mom you are, because we are all equally great, and we all rock!

Scared baby against crazy mother

No matter what your day looks like as a mom, one thing we all know is that it is one TOUGH job. There are days that you know you completely rocked and others that are not so fantastic, to say the least. There are moments when I just nailed it and thought that someone was going to drop down from the sky and present me with some type of award. Because clearly I deserved it!

On the flip side there have been moments where I have questioned whether someone was checked out mentally when they gave the go ahead for this to happen in my life. Okay so that is a bit extreme, but you get my point and I know for a fact that you can relate.

11 Things Not to Say to an ASD Parent

It wasn’t until the day that one of my children was diagnosed with both Autism Spectrum Disorder and Sensory Processing Disorder that I realized quite how upsetting the topic was to many people. I still do not know why labels that are used for medical purposes, that open doors for children in need, can be such an issue for so many. After all, the word “Autism” to me is just a word. My child is still my child, and the world we live in may be unique at times, but it is also extraordinary.

I’m not sure if people just don’t know what to say, or if they are simply uninformed and inexperienced. As a parent of two children who face specific challenges, I can assure you that there are a list of things that I have had said to me that are anything but helpful.

Here are just a few: