What is Sensory Processing Disorder?

Adrienne Gaither, OTR, C-SIPT with the Autism Community Network in San Antonio Texas, addresses questions on Sensory Processing and how the disorder may apply to your child diagnosed with an Autism Spectrum Disorder.

What is Sensory Processing Disorder (SPD)?

Watch the rest of this medical vlog series:

Suspect Aspergers?

So did we, and this checklist helped

Our son has Aspergers Syndrome. However, getting the diagnosis didn’t come easy and the path to that diagnosis was rocky to say the least. That was over 10 years ago and still the following checklist we received from our school district is the best heads-up to having Aspergers Syndrome that I’ve seen to date. It cuts to the chase.

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The following is only meant as a ‘checklist’. Remember, this is not an official document, and is only meant to act as a flag for a strong suspicion of Aspergers Syndrome, a doctor or trained therapist would need to make the official diagnosis.

However if you are looking for a guideline of sorts, it doesn’t get much better or black and white than the form below. It was spot on for us describing our son Sam. We’ve also put it in a downloadable format at the bottom. May it lead you towards illumination!                  -Jennifer Allen/Aspergers101

A Day with the great Eustacia Cutler!

Note: This was one of our most popular posts and we thought it worthwhile to share again… 

Occasionally in life, if you are lucky, you brush alongside greatness. Not celebrity, but greatness. A person truly inspired to invent, revolutionize, and create with the added momentum to actually implement their gift toward worldwide betterment.

I was blessed to have been afforded many hours with such greatness.

Eustacia Cutler was born into a privilege that most only have viewed actress Grace Kelly portray on film. Her book, A Thorn in My Pocket, depicts her life in a nostalgia that few today can even begin to imagine. Her Cotillion, the Dedham Polo Club, times at the Vineyard, life at Cambridge, Harvard, and stories of shared company of notables such as Winston Churchill, George Gershwin and Robert Frost. Talk more with Eustacia, and you will learn of her father’s invention revolutionizing flight. However, all of this is not the sum of the greatness of Ms Cutler. You’ve heard the statement not everything that glitters is gold? You see, Eustacia was married and had 4 children, one of whom had Autism.

Eustacia-Cutler

In the 50s the pressure to institutionalize such a child came from doctors and family members. But when the pressure came from her husband, she went completely against the grain for the sake of her child, Temple.

Yes, as most of you know Eustacia Cutler is the mother of Dr. Temple Grandin. Dr. Grandin who went on to revolutionize the cattle industry as well as turn the world’s perception of Autism on its ear. Most of this information you probably already know, but the part you do not know is the day I was afforded time alongside Eustacia Cutler.

The 23rd Annual Texas Autism Conference was held in Corpus Christi this past week, and Sam and I had been asked to speak at one of the break-out sessions. The keynote speaker was Eustacia Cutler, who at the age of 88 offered such valuable and insightful information to the thirsty crowd of educators, parents and professionals, they were brought to their feet more than once. Her clarity, concern and connection with all in the room (primarily the mothers) intrigued my autistic son, Sam who was one of 4 to jump at the chance when the offer came to come up to the podium alongside her for a personal Q & A. When Sam (one of very few males in attendance) approached her and announced his name, and that he had Aspergers Syndrome the applause resonated with acceptance. Sam poised the question if Ms. Cutler was familiar with Moore’s Law which states that technology will grow at an exponential rate and if so, how does she perceive it will affect people with aspergers? Without missing a beat and looking my son straight in the eye she stated we, as humans, have a challenge ahead of us. Technology is essential, but perhaps Sam could be a forerunner bearing the seemingly impossible task of keeping the human factor within the technology field.

Her mind ever-sharp and in the moment allowed for many ‘ahh’ moments to walk away with. Here are just a few:

Born into Aspergers

Alix Generous

I want to address the difference between “in spite of” and “because of”. One of the greatest equalizers that spans across all barriers of humanity is that we individually cannot choose when we are born and when we die. I was born a sensitive and socially honest soul into a superficial and insincere social environment.

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If I was born in a world where people constantly strive for self-improvement, valued relationships rather than objects, and looked for acceptance over status, I think I would have been just fine. The kind who prefers the former bullied me to think I’m crazy but I don’t think I am. So if I take this perspective, I did succeed in spite of these kinds of environments.

I knew from a young age that I wanted to help people.

Star opens up about son’s Aspergers Syndrome

We are re-posting a portion of a Disability Scoop interview with  ‘Covert Affairs’ Star Christopher Gorham whose son has Aspergers Syndrome. This Hollywood actor has been in such TV programs as  Ugly Betty, Popular, Odyssey 5, Jake 2.0, Medical Investigation, Out of Practice, Harper’s Island and Covert Affairs. Gorham is currently working on his next project “Justice League: Throne of Atlantis,” where he provides the voice of the Flash.

Disability Scoop: Personally speaking, your son was diagnosed with Asperger’s syndrome not too long ago. What was that like?

Christopher Gorham: We got a diagnosis fairly late. He was 9-years-old, which is kind of the blessing and the curse of that diagnosis. Because he’s very high functioning we didn’t really know that something was off until later. It’s upsetting to hear that something is wrong with your child. At the same time, it’s a relief to know what’s wrong with your child because if you know what’s wrong then you can start to take steps to help them.

Disability Scoop: When did you first notice that something might not be right?

 (Photo: Courtesy of Robert Ascroft/USA Network)

(Photo: Courtesy of Robert Ascroft/USA Network)

Christopher Gorham: Second grade was when we really knew we needed to start investigating and finding help. What we were doing didn’t seem to be working and things were getting worse and he was just getting further and further away from his peers. (He was) not understanding the subtleties of socializing, not getting sarcasm, not understanding the difference between someone who’s really being nice to you and someone who’s actually making fun of you, not understanding that all attention isn’t positive. It’s really hard for a parent when your son comes home and tells you that his best friends are the two or three kids who are actually the meanest to him.

Disability Scoop: How has this new diagnosis changed your family’s day-to-day life?

Christopher Gorham: You get the diagnosis and then instead of just taking the kids to Taekwondo after school, now suddenly you’ve got occupational therapy and you’ve got speech therapy and you’ve got the psychologist and you’ve got the behavioral specialist. Your week is filled with therapies to help support him and it becomes so hard to find the balance.

Disability Scoop: How do you manage it all while shooting the show?

Asperger Syndrome explained perfectly on “Arthur”

In a little over 2 minutes, this episode of the childrens animated program, Arthur, explains Aspergers Syndrome in a way that even judgmental adults can understand! Great way to have your visiting relatives and holiday guests understand your Asperger child’s actions and reactions during a lengthy stay.

Aspergers and Sensitivity to Color: Interior Designer Focuses on Interiors for Those with Autism

The interior designer who caters to sensory issues

When our youngest son was no more than 6 years old, we would enter a restaurant or someone’s home and he would throw up. He told us it was a picture or something on the wall that made him so ill.

I thought it had to be due to the content of the picture but after years of testing we found out it was the color! Yes, oftentimes those with sensory issues are not just sensitive to sound and noise, but also have a severe sensitivity to loud splashes of color.

The following article discusses an interior designer who takes that sensitivity in mind when decorating. If she can do it, we can too!

-Jennifer Allen

Designer Focuses On Interiors For Those With Autism

With her son Devin’s needs in mind, A.J. Paton-Wildes chose neutral colors for the walls and new flooring in the living room of their Oak Park Heights, Minn., home. As an interior designer, Paton-Wildes incorporates her personal experience with Devin, who has autism, to help create calming spaces for those on the spectrum. (Jeff Wheeler/Minneapolis Star Tribune/TNS)

MINNEAPOLIS — A.J. Paron-Wildes’ home, a walk-out rambler in suburban Oak Park Heights, Minn., is a study in calm — all clean, uncluttered spaces and earthy, neutral hues that echo the autumn leaves framing the view of the St. Croix River. On an autumn afternoon, daughter Eva, 6, is having an after-school snack, while son Devin, 19, sketches intently, seated at the studio desk in his orderly bedroom.

Aspergers Syndrome: The Challenge of Reading Facial Expressions

Top of the Spectrum News

“Social Expectations: The inability to read facial expressions

For neuro-typicals, reading facial expressions comes easy but for those on the spectrum this is near impossible. The difficulty that those with Autism experience in reading facial expressions is due to the different wiring in the frontal lobe of the brain. This Top of the Spectrum News video offers solutions and tools, such as observational learning.