Asperger Fact Sheet

by AANE Staff

We thought this a great basic overview (face sheet) of Asperger Syndrome by the staff at the Asperger/Autism Network. Nice to share if you or someone you know suspects autism.

About Asperger Syndrome:

  • It is a neurological condition that affects the way information is processed in the brain.
  • AS is a hidden disability. Many people appear very competent, but they have difficulties in the areas of communication and social interaction.
  • AS has a genetic and hereditary component and may have additional interactive environmental causes, as yet unknown.
  • AS is a developmental disability. All individuals have social/emotional delays, but continued growth seems to be life-long.
  • The incidence of AS is thought to be 1 in 250. As many as 50% of people with AS may be undiagnosed.
  • There are currently four males diagnosed with AS for every one female, but the true ratio may be as high as one female for every two males.

AS affects each person differently, although there is a core set of features that most people with AS have, to different extents, including:

    • Having a very high intelligence and good verbal skills.
    • Having challenges with the use and understanding of language in social contexts.
    • Having trouble understanding what others are thinking and feeling (called Theory of Mind or perspective taking).
    • Needing to be taught social behavior that is “picked up on” intuitively by others.
    • Having difficulty understanding non-verbal cues such as hand movements, facial expressions, and tones of voice.

ASD and Trouble Sleeping?

Searching for 125 Sleep Study Participants

If your child (or young adult) diagnosed with ASD has difficulty sleeping and would like to try out a Sound Pillow Sleep System (a non-allergenic twin size pillow with an easy-to-use MP3 Player pre-loaded with 18 one hour tracks of nature sounds, slow evolutionary music and noise files) please sign up!

Clinical Research Study includes the use of a Sound Pillow Sleep System for an 8-Week trial, at No Cost to Participant.

Picture: Wall Street Journal

We would love for you to help us with our research study. The Suzanne Vitale Clinical Education Complex and Western Kentucky University are currently recruiting 125 participants, Male and Female, ages 6 – 27, with an Autism Spectrum Diagnosis, experiencing mild-to-severe sleep disturbances. Clinical Research Study includes the use of a Sound Pillow Sleep System for an 8-Week trial, at No Cost to Participant. The Study is open to USA Residence (only); including Alaska and Hawaii. Acceptance into this study is based on a “FIRST-COME, FIRST-SERVED” basis.

Please click the link for more information or to sign-up!https://www.wku.edu/wkucec/soundpillow.php

 

For autism research pioneers, early work paved path to success

MICHAEL AUSTIN / THE ISPOT

Getting to the top generally requires years of hard work, committed mentors and many missteps along the way.We asked a few of the most distinguished autism researchers to share memories from their first autism study, including their initial assumptions and what they’ve learned since. Their answers reveal the origins of modern theories as well as how much ideas about autism have changed over the years.

Uta Frith:

My first study was inspired by an ingenious experiment by my wonderful Ph.D. supervisors, Beate Hermelin and Neil O’Connor. They compared recall for random words (for instance, “fish, ate, they, fresh”) and for the same words when they formed sentences (“They ate fresh fish.”). Normally, we expect recall for words in sentences to be a lot better than recall for words in random strings. But this was not the case for children diagnosed with Autism. I was fascinated by this finding and wanted to repeat it. This led to my first and only paper ever accepted without revision, in 19691.

 

In that first study, I recorded myself saying strings of words and played them back to the children and asked them to repeat what they heard. I soon gave up using the tape recorder, which only distracted the children. I found they willingly did the task as long as I spoke the words to them directly.

Aspergers, Nonverbal Learning Disorder (NLD), and Families: A List of Resources for You

Parents of any child with differences struggle with feeling isolated. One of the challenges for families with Aspergers Syndrome (AS) and nonverbal learning disabilities (NLD or NVLD) children is that these children don’t look different. They’re bright and verbal; their quirkiness, sensitivities and apparent oppositionalism aren’t easy to understand.

Kid having a tantrum

As a result, parents often feel blamed for their children’s special challenges. I know one mother who was told bluntly by her brother, “You must be doing something wrong. Give me two weeks with that kid in my house and I’d straighten him out.”

Why Is There A Rise In Autism?

by: Klaire Smith

The estimation of changes in the patterns and numbers of the cases of autism in the US has recently become fairly complicated with the main debate being about the documented cases of the autism spectrum disorder.  In the previous years, it was much easier to pin down the exact rates of autism as the cases also did not appear as much as they do now. For example, in the 1970s, and 1980s, the reports on ASD concluded that every 1 out of the 2000 children suffered from autism.

In accordance with the results of the survey conducted by Centers for Disease Control and Prevention from 2012 and 2013, the number of cases went up significantly to every 1 in every 80 children having ASD.

In the following year, the CDC conducted a National Health Interview Survey to note any progressions in the patterns of autism across the US. The survey showed that ASD was more prevalent than it had ever been, with every 1 in 45 children having the symptoms of autism.

What caused such a big rise in the number of autism cases?

The new questionnaire used in the 2014 survey by the CDC may hold an important role in it. The questionnaire used in the most recent survey also asked about Asperger’s syndrome unlike the ones conducted previously.

Asperger’s syndrome used to have its own, separate diagnosis until 2013 when it was enlisted with the autism spectrum disorders and no longer considered a different health condition.

 With the new addition to the autism diagnosis, the 11000 families which were requested to complete the survey were questioned about the diagnosis of a pervasive developmental disorder, Asperger’s, and autism spectrum disorder. Read more on the CDC’s report here.

The question regarding Asperger’s syndrome held a significant role in the sudden rise in the rates of autism cases in the most recent survey but it is argued that there are also a number of other reasons which have played an equally important role.

Are Asperger’s syndrome and autism similar?

Autism and Asperger’s syndrome have similar symptoms in children and cause about same issues. Children who have either of the conditions have similar troubles like the inability to make eye contact and expressing their feelings and problems in picking up body language.

What is Sensory Processing Disorder?

Adrienne Gaither, OTR, C-SIPT with the Autism Community Network in San Antonio Texas, addresses questions on Sensory Processing and how the disorder may apply to your child diagnosed with an Autism Spectrum Disorder.

What is Sensory Processing Disorder (SPD)?

Watch the rest of this medical vlog series:

What If It Snowed In San Antonio?

Caring for the Caregiver

This is the third installment of my piece speaking about the health of a caregiver and it has been an interesting journey these past weeks. We as caregivers get in such and stay in such serious modes, that sometimes it takes something drastic to pop us out of our self imposed prisons of heaviness and sometimes fear. Last night in San Antonio and much of Texas it full on snowed, now for some of us who were raised around snow, (my parents were bi coastal people), this could have seemed mundane but it was not anything of the sort. I was so happy and joyful that it was snowing, I surprised myself and as I looked around me, everyone and I mean everyone was smiling and laughing and making snowballs and snowmen. Then it hit me, it hit me why I had to wait till this very moment to write this very thing. Life and it’s tragedies are real but in those moments of lifting and or explaining, or seeing people’s faces in reaction to perhaps a behavior your person was exhibiting, in those moments the divine breaks in. Now maybe it’s not snow in the south or something as drastic as that but I believe wholeheartedly that we are given sweet miracle moments that release us from the prison and remind us that we are free to live and enjoy and to find joy in the Big and little things in life. I can tell you, I love each and every one of you who are struggling to be, when you don’t even know if you can put one foot in front of the other. I send you thoughts and knowledge that you can find the divine and joy in your task of caregiving, you just have to seek them, to go after them because joy can seem fleeting like the melting snow but the take away is this. When we can choose to see the beauty in a smile, or in a victorious moment where we somehow connect to and with our people, then that is where we see the miracles happen of this season and all year round . We may feel exhausted and cranky sometimes as caregivers but let us remember the beauty we are giving we get back in unexpected ways. Seek those moments and I know you will not be disappointed.

Joy and Peace,

Dr. Ghia

281 772 5843

dr.ghia7@gmail.com

 

What Are School Accommodations and Modifications for Students with Asperger’s?

Some students with disabilities require accommodations or modifications to their educational program in order to participate in the general curriculum and be successful in school. Each child with autism or Asperger’s Syndrome is different and has their own unique needs. Parents will meet with school personnel in an ARD/IEP meeting to determine what accommodations and modifications should be implemented to best assist their child. It is imperative that parents and educators understand the difference between the two.

Portrait of schoolboy looking at camera at workplace with anothe

For many students with Asperger’s Syndrome, accommodations will be needed to access the curriculum and remain in the least restrictive environment. Accommodations (the HOW) can be made for any student. Students do not need to have a 504 plan or an IEP.

Fidgeting: Using Games and Exercise for Children with Excess Energy

Fidgeting is a common result of excess energy in children and can interfere with positive behaviors. Excess energy and fidgeting can be distracting and disrupt learning. According to an article on Autism Speaks, by Geraldine Dawson and Michael Rosanoff, “Increased aerobic exercise can significantly decrease the frequency of negative, self-stimulating behaviors that are common among individuals with autism, while not decreasing other positive behaviors.” Exercise is a positive outlet for children exhibiting these behaviors.

Physical activity will release some of this energy and in turn, promote positive behavior. Lack of time is a common barrier to fitness with therapy sessions, school, and doctor visits. To help facilitate this we have come up with some ideas for fun exercising regardless of a busy schedule. We have provided different options based on various children’s interests, in order to keep them fully engaged, as well as different variations depending on the level of comprehension in each child.

Understanding Crisis Behavior in People with Aspergers

Some individuals with Aspergers or HFA may engage in crisis behavior that interferes with their learning, puts themselves or others at risk, prevents them from participating in various activities, or impedes the development of relationships. Crisis behavior can range in severity from low productivity to meltdowns that involve aggression, self-injury, or property destruction.

Stressed teen girl screaming, shouting

Many individuals unfamiliar with Aspergers may believe these types of behaviors are intentional and malicious. However, it has become well known that problem behaviors often serve a function for the individual engaging in the behaviors. Additionally, deficits in the areas characterized by Aspergers may impact behavior.