Anxiety-related symptoms are frequent concerns in children, adolescents and adults with Aspergers and HFA, which may be treatable with Cognitive Behavioral Therapy.

the pain

Anxiety is commonly found in high functioning individuals on the spectrum in particular because they have an increased awareness of their own social difficulties. This cognitive awareness may intensify their anxiety toward social interaction and promote isolation.

Recent numbers found that 11-84% of children on the autism spectrum experience impairing anxiety, while only 4.7% of all children aged 3-17 years have experienced anxiety.

Cognitive Behavioral Therapy (CBT) is a type of psychotherapeutic treatment that helps individuals recognize how thoughts and feelings influence behavior and cope with these challenges.

CBT is used to treat a wide range of issues, in addition to anxiety, including:Continue Reading

Using Choice to Increase Academic Success

Topic cards are similar to scripts in that they can help students engage in a variety of topics, beyond their own interests. They are different in that they include just a few words that describe a topic that launch a student or group students in a particular direction. 

Using Choice to Increase Academic Success

A teacher had created a special lunch group to help a student at the middle school level engage in appropriate teen conversations. She had one main interest and it would dominate every conversation. Her interest was in princesses and everything having to do with them. For most young teen girls, princesses were not much of an interesting topic for them.

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Growing up there was nothing I wanted more in this world than for people to see me for exactly who I am, and like me for it. I drive myself mad looking for this, because identity is unstable. People change as they get older through a combination of experience, genetic predispositions, and neuroplasticity. Aspergers is one fickle diagnoses, mainly because it is susceptible to all kinds of misinterpretation.
And then this miraculous invention called Facebook came out.

Alix Generous

I joined Facebook in 2006 when it was still a relatively small community. One thing I loved about Facebook is that the social norms were different from in-person interaction, and often times made things easier on me. I can connect with people and not be criticized for my lack of eye contact or vocal tone.

I can filter my blunt comments, and assess my honesty before I say anything. Additionally, I can access hundreds of people within minutes who share my obscure interests, like Russian history or Phantom of the Opera. I think some of the first groups I joined were “addicted to piano,” and “when I was your age Pluto was a planet.” I had lived in 3 states and 2 countries at that point, and I could keep in touch with all of my friends from around the world.
Nowadays it seems like everyone I know is on Facebook and as a result, I have to keep my freak flag on a leash. Both of my grandmas are now on Facebook, and one of them said to me: “You better watch what you post because it might come back to bite you.”

What does that even mean? Do you even know how to use Facebook grandma? Turns out she did and also learned how to use an iPad way before I’d even seen one. To give you an idea of some of the posts my grandma was referring to, here is an example:

Dear girl who cheated off my exam today,
You’re a jerk.
Unfortunately for you, So am I. I put all the wrong answers in for you to copy and waited until you left to put the right ones in. It’s called studying.
sincerely,
Your passive aggressive classmate, Alix
I think social media’s impact on how we incorporate technology in our daily lives can condition us to display Asperger-type symptoms, the kind that my social skills training and family taught me not to do. Growing up my mom taught me to never use my cell phone at the table. To this day I never pull out my cell phone at a nice restaurant, even when asked to. Now when my friends and I go out, one is Instagramming their cocktail, the other answering a text from her husband, etc.
I don’t meet very many people my age who impress me with their ability to hold down a sincere conversation. I went to a youth group activity that was a meet and greet for young adults.  I knew absolutely no one. I turned to this guy next to me and asked casually “What’s your name?”. He responded with one word “Martin,” and didn’t even look me in the eye, but instead was looking down at his phone where he had Facebook open.
I was talking to a CEO who runs a prominent company, he told me that when he hires graduates he looks for people who can look him in the eye,  shake his hand, and carry on a conversation on top of meeting a few of the skills that would contribute to his company (e.g. using a computer program, or proficiency in Spanish, etc). He looks for people who have complex analytical skills or specialize in mastering one area. He could care less about the transcripts or grade point average of our degree.
There is hope for us with autism and there is a reason we should constantly strive to improve our social skills on top of pursuing our interests, because there are people who appreciate us for who we are and what we have. But in order to bridge that gap, we must have those social skills, even if Facebook and other social media is degrading the quality of interactions we have with people in person.
By Alix Generous

When people think of student activities for Aspergers students, especially those in college, some may feel tempted to believe that such activities are not suitable for them. Students with Aspergers could feel hindered by a number of issues, whether it be social anxiety, time management, lack of awareness, or longer study sessions due to slower information processing, to name a few.

College, students, activities, organizations

The ASD student and/or those around them too often assume that such issues would prevent them from getting anything out of an activity. Consequently, this commonly held false assumption only makes it so that the Asperger’s student likely does not develop the inclination to do much beyond their comfort zones.

I suggest 10 steps that can help the ASD college student get beyond this:

  1. Take inventory of organizations in which you could get involved.

    • Ask a residence hall worker or go to the activities office and get a list of potential organizations and begin research
    • Go to events, such as student activities nights, whose purpose is to expose students or the public to organizations or look on website if there is one

  1. Explore the organizations online and then engage with them (ideal for introverts).

    • Usually, word of mouth and stories from current friends/acquaintances establishes links and piques interests of those with ASD, despite any general reluctance for involvement, as well as (stereotypically) restricted interests

  1. Do your homework: Understand the organization’s missions, visions, values, member testimonials, events, contact information.

    • Identify primary contacts
      • First priority to contact is a person in charge, or a group facilitator
    • Understand the steps to joining the organization

  1. Introduce yourself or get an introduction from somebody if necessary.

    • Both scenarios encompass a self-introduction and this is critical because it allows others to acknowledge and accept the true personality of the Asperger’s student

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script, social skills, asd

Actors use scripts to help them memorize dialogue as part of their performance. Once they have memorized the script, then they can recite the words from memory adding meaning through inflection, tone and pauses. One of the common strengths of students with an autism spectrum disorder is that of rote memorization.

script, social skills, asd

Therefore, a script may be an excellent tool to build conversational skills. Scripts are written sentences or paragraphs that individuals can memorize and use as supports in social situations. From greetings to asking for help to engaging in a conversation, a script can be a simple and discrete visual support.

When possible, student interests may be incorporated to heighten motivation to use this strategy. If a student likes Harry Potter books, a script can incorporate pictures that represent events from that book that relate to the content of the script.

Scripts can also support students that tend to shift the conversation back to their own special interest.

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Animal Shelter

Volunteering at an animal shelter is a great way for tweens, teens and young adults on the autism spectrum to practice and improve social and job skills. They also learn responsibility and a respect for animals. As visitors come into animal shelters to look at animals available for adoption, it’s the perfect place for teens to improve face-to-face communication. The experience they gain volunteering at an animal shelter molds them into more effective volunteers and prepares them for the workforce.

Animal Shelter

Volunteering at an animal shelter is a fantastic opportunity, especially for teens with Aspergers. It has been widely discussed that children, teens, and adults with Aspergers form strong bonds with pets, and can greatly benefit from animal companionship.

Their time spent volunteering will produce better outcomes (adoptions) if they have good communication skills. Here are some top social skills from my book to ensure teens maximize the chance of an animal getting adopted, and master important social and job skills:

1. Smile and Say Hello:

When you see another person, whether a co-volunteer, staff member or visitor, smile and say “Hello”. Your smile will set the tone for positive future interactions and brighten the person’s day. It may even lead to an animal getting adopted or a financial donation. It all starts with a smile!

I used to volunteer at an animal shelter walking dogs. Often I would be in the back of the shelter bringing a dog in or taking one out. There would be people in the back of the animal shelter looking for animals to possibly adopt. I would smile and say “Hello”. I’d ask if they had questions about any of the dogs I walked. Often they would. After telling them about the animals, I’d suggest they spend time with any animal they were interested in. About 70% of the time they’d end up adopting an animal just because I engaged them and was able to provide helpful information. You can do the same thing!

2. Turn Off the Electronics:

When you are volunteering, keep your phone at home, or turned off, on silent or vibrate mode, and out of sight. This is part of being a professional volunteer and lays the foundation for good work habits.

3. Say Please and Thank You:

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One of the most difficult roles of Aspergers Syndrome is that of a student. It is challenging for them to make friends and to learn solely on the basis of what teachers provide. Unfortunately, Aspergers students often fall behind, get in trouble, or become bullying victims. For any of these reasons, getting through the typical school day proves to be a real hassle.

However, Aspergers students can do much in their power to make the most of school days, even with a multitude of challenges.

1.Those who demonstrate their natural capabilities for honesty, intelligence, and personal strength tend to receive support, praise, and encouragement from peers and school staff alike. 

For example, the Aspergers student who struggles with essay writing ensures greater success when he gets aid from his English teacher, as opposed to when he remains silent. Moreover, the teacher becomes more likely to notice his specific strengths and weaknesses in the subject. Therefore, the teacher obtains more information to help him in the future.

Another example is the Aspergers student who lies on the verge of academic failure; she scores low in multiple classes.

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When I was diagnosed with Aspergers, my parents enrolled me in 48 hours a week of social skills and coping mechanism training. That was 10 years ago. These are 23 friendly suggestions I still find to be true and carry with me today.

Alix Generous
Alix Generous

My 23 Truths

  1. Never follow advice that you intend to carry out by hurting another living being.
  2. Find what you love and pursue it even if it means working twice as hard in other areas of your life in order to do so. It can be one thing or it can be many. Obsessions and interests can lead to successful careers. Additionally, if you’re interested in a task you’ll do better at it.
  3. Following blind happiness is a better decision than choosing certain unhappiness, as long as you apply appropriate practical skills and common sense (which can be learned in a Google search). No matter where you are and what situation you may be in, this isn’t your parent’s, boss, or teacher’s life, it’s your own. With the accumulation of knowledge and self discovery you can make choices that will shape the life you want. If you want to be a scientist, do what you need to in order to make that happen. That path is not exactly linear, you might have to do things differently than others, but that doesn’t make it bad or wrong to pursue. I had an incredible amount of difficulty socially when I started college in Charleston, SC. It was the weirdest feeling because I had wonderful friends there as well as great education and academic support. It never made sense why I was unhappy there but the moment I moved up to Boston 2 years ago, the unhappiness slipped away. Against the advice of my family, I drove to Boston, found an apartment, and an internship in one weekend, and met the love of my life. This move was all based on the feeling that Boston was the place I needed to be. I fit in well because I could talk to people about quantum physics and current issues, and have people eagerly teach me more than I could possibly understand, rather than think I’m weird.
  4. If one way doesn’t work, don’t linger on the frustration of a broken road. Find a better way.
  5. Study with people who are smarter than you and sit next to the nicest person in class.
  6. A great idea implemented in an effective way will always trump prestige and superficial qualities that seem out of reach for those on the spectrum. Your mind is an asset, and if you use it properly without shame or pride, you can change the world.
  7. The best way to figure out whether someone is manipulating you or helping you is to ask yourself: Do they want something from me? People can only manipulate you if you have something they want. Special educators sometimes neglect the needs of high-functioning autism in order to retain disability funds.
  8. Finding who you are is a continuous journey, not a specific event that happens. It frustrates me how adolescence is deemed a time of searching for identity, because it implies that becoming an adult means you know every aspect of who you are. That’s a bunch of Bologna. I’ve met people of all ages who vary in behavioral patterns and world views. Accept, understand, and utilize your strengths as they are at this moment, and use a growth mindset to improve yourself.
  9. The easiest way to interact with someone who thinks and feel differently then you do is to ask them questions.
  10. In a debate, argument, or conflict, always validate the opposing persons view before stating your own view.
  11. When in doubt, Google. When googling, question the reliability and truth of everything. Look at the people who make claims, and ask yourself if they have a sufficient amount of knowledge to make such a claim. The more proactive you are in your education, the less you have to rely on others for answers. You can find all laws, licenses, addresses, and criminal records within a simple click. This is something you should do in regards to everyone involved in providing accommodations for you such as counselors, doctors, and tutors.
  12. Social media is not a substitute for in person interaction. Social skills like table manners or looking someone in the eye when you shake their hand are invaluable.
  13. Don’t take advice from hypocrites. For example, don’t take relationship and marriage advice from someone whose had 3 marriages end in divorce.
  14. Vaccines do not cause autism. This study was published by a scientist who was jaded by his funding sources, and falsified his data in order to get published. The journal that published his research revoked the paper, and denounced its validity after learning the truth of his research methods.
  15. Firm and non-flexible opinions stunt intellectual growth and stifle your own truth. Research all sides of one issue before deciding for yourself.
  16. Make choices that bring you closer to your goals, not based simply on what you feel. Mastering this habit will help you overcome lethargy, anhedonia, and other symptoms of depression and social anxiety associated with Aspergers.
  17. People are just people. No matter what it may seem, the most seemingly superficial or flawless of individuals have imperfections and insecurities. The success of a person is determined by how they deal with their imperfections and insecurities, not the existence of them. Everyone has their weaknesses, some people are just better at hiding it than others.
  18. The energy you put in will be returned to you. Say positive things to yourself and surround yourself with positive people even if you don’t feel it, because it will make your surroundings positive and supportive to who you are. You might have to boot out some psycho family members or close friends if they are creating more negative emotions than positive, but trust me it’s worth it. Be brave, set those boundaries so you and others can be inspired to improve.
  19. The easiest way to affect an individual’s first impression of you is with make up, hair, clothes,and body posture. Changing facial expression, tone, and word choice take a lot more work. Hair and makeup never came naturally to me and I didn’t start learning how to use them until I went to college. Pinterest has lots of simple tutorials. Because of sensory issues, I only wear makeup for special events.
  20. People are not divided into two categories of “weird” and “normal”. Everyone exists on a spectrum.
  21. Go out of your way to figure out what aspects of yourself you can improve on, and which ones you can’t. Love every part of yourself either way.
  22. There is never any need to be mean. Being nice does not equate to being a pushover and you can always present constructive criticism in a respectful manner.
  23. Keep firm boundaries in the work place. Your personal and private life are better left separate. If you don’t believe me, try bringing up your aunt’s kidney stone as a casual conversation and tell me how it goes.

I send all my love and support to all of you reading this post.
-Alix

social skills

The topics discussed in this blog are often inspired by questions from readers.  This week’s topic of developing social skills is in response to such a question from a parent.

social skills

As you develop social skills, it would be helpful to identify the specific skill[s] that you and your child feels would be most beneficial.  For instance, do they struggle in initiating conversations?

If so, then two strategies might be helpful that you can work on at home.

First, conversation starters or scripts might provide the support necessary to engage in this difficult social skill.  More information can be found in a publication title:  Life Journey Through Autism:  An Educator’s Guide to Asperger Syndrome which is available as a free download at the following website:  http://researchautism.org/

A companion strategy is video modeling.

Depending on the specific skills that you want to develop, you can either make, find or purchase videos that teach how to do that specific skill. I have found some quality videos on YouTube or TeacherTube.  Another resource for purchase is available through Model Me Kids at http://www.modelmekids.com/.

In trying to provide information about programs that are evidence-based, I would like to share the following from the attached article titled:

Evidence-Based Social Skills Training for Adolescents with Autism Spectrum Disorders: The UCLA PEERS Program

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I’m emailing with Kris Jones, an eloquent writer on Linkedin about his Asperger’s Syndrome. We’re talking about the stressors he experiences that can create extremely self-limiting anxiety. We’re going to use several blogs to talk about different stressors. Kris’s first stressor was his lack of self–fulfillment. One of the causes of this lack of self-fulfillment was Kris’ social anxiety.

Tony Attwood, expert on Asperger’s Syndrome, suggests that around 65% of adolescents with Asperger Syndrome have a secondary mood or affective disorder (such as depression or anxiety); most have anxiety.

anxiety/stress

Kris describes his thoughts and feelings which I’m calling social anxiety like so: “No one likes you. No one wants to know you. You are not interesting. Stay where you feel most comfortable – inside your house and away from others. You are not fit to be out there amongst the human race.” He says that this is representative of how he feels and it is what keeps him from going out and mingling with others his age. Even though he knows these thoughts about himself aren’t true, he can’t get past the anxiety.

Let’s break this down into parts. What causes this social anxiety?Continue Reading

Prefer to listen instead of read? Check out the podcast version of this blog from Starfish Social Club below!

https://anchor.fm/starfishsocialclub

Welcome to part two of our conversations theme! This part will cover initiating conversations, ending conversations, interruptions, monitoring length of turn, and picking up on social cues.

You Can Read Part 1 of Teaching Conversation Skills Here

1. Initiating a conversation

This is a really difficult task, even for people without social learning challenges. The first step is to ‘read the room’ to determine if it’s an appropriate time and/or place to start a conversation. Lunch at school is a great time and place, but in the middle of Algebra is not. A place where people are waiting is usually acceptable (waiting room, public transportation, in line at a store), but not if the intended conversation partner is on the phone or talking to someone else.

*Note: If you are initiating a conversation with someone you know, you can typically do so with a basic conversation starter. Examples include:

Initiating a conversation with a stranger or acquaintance takes a little more work as these openers would typically make a stranger or acquaintance feel a bit uncomfortable. The remainder of this section applies to initiating a conversation with a stranger or acquaintance.

  • Hey, what’s up?
  • How are you?
  • How was your weekend?
  • What are you up to?
  • How have you been?

Once it’s been determined that the conditions are appropriate, think of something you notice about that person as a starter. We typically recommend things that are outside the torso area so our intentions aren’t misinterpreted.

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Video Games, Aspergers, Aspie

Sure, it is compelling to think that video games have no real-life value, especially for aspies, who desire long solitude. They enable an aspie to escape from the world around them and enter virtual realities that do not test their development in various ways. Thus, video games do not embrace significant personal or professional growth. However, aspies and their families can leverage some not-so-obvious benefits from limited video game time, rather than playing them for either countless hours or no hours whatsoever. Here are some of the greatest subtle benefits:

Video Games, Aspergers, Aspie

  1. Aspies can learn about the various aspects of storytelling using a video games’ entertainment value to remain interested in the big picture.

From the general plot to the narrative arc, to the specific rhetorical techniques that game developers use in each game, the aspie can learn to connect the dots in a grand scheme. As they play the game one action leads to another. This kind of learning is best mainly because the aspie brain best processes one thing at a time in a chronological, fact-oriented sequence.

  1. Video games challenge aspies to think strategically to accomplish goals.

One may find that an aspie who is addicted to their video games completes the game 100% within a matter of days, or shorter. Not only that, they remember every detail about the game. However, this remarkable knowledge did not come without making a few mistakes and starting over.

Amateur players do not progress through every level or location in each game smoothly the first or even the first several times around. They learn by understanding their choke points; the points where they inevitably go wrong, as well as anything they missed. This trial-and-error mindset attributes to all kinds of “real world” situations and serves as a more appropriate substitute to fear of moving forward or pursuing a professional endeavor.

  1. Increasing difficulty on video games enables aspies to think critically in order to develop emotional intelligence.

Difficult situations require difficult actions, even in the virtual world. In the case of younger aspies, video games can serve as a means to develop emotional intelligence. It can make a child go from a complainer to a decisive, empowered strategist.

Frankly, however, this scenario is unlikely to take place without a little reflection on the part of the aspie and their family. More specifically, parents could (and should) take the opportunity to not only set reasonable limits with the aspie, but to also inquire about what exactly the aspie takes from game playing. Afterwards, the parent can then persuade the aspie to attribute this constructive process to various situations, such as the aspie’s typical situations at school. This thought-provoking technique fosters mature growth and the taking of adult-level responsibility.

  1. Games with stories allow aspies to think in an abstract, rather than an always-concrete manner.

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