Super Mom, Special needs mom

This is an older post. One I wrote many years ago when my son, Samuel was very young. The alienation I felt then, has been replaced with an empathetic wisdom from life lived. Seems important not to forget those initial (relate-able) feelings as many of you are just beginning your journey with Autism. Know you are not alone and that the hope you have for your child, above all the noise, is what will be your child’s ultimate ‘therapy’ for living the best life possible!

Neurotypical Mom, as a Special Needs Mom your world is foreign to me. Rotating seasons of soccer, cool moms club, overnight parties, and college sororities comprise a universe outside my own. Church youth camps and activities that have the word “team” in them are daily reminders that I have a special needs child. Your child is included, mine is not. And I must find a way to turn these negatives into positives for the sake of my child’s future.

You see compassion instead of judgment; inclusion is actually put into practice instead of just being a buzz-word; and being a warrior for your child might be the strongest asset you women posses!

Super Mom, Special needs mom

Raised competitive from a small town with sports and cheerleading in a world that didn’t include Autism makes it even more difficult to confess these surprising emotions. I’m not a whiner but what I want to do is shout “It’s not fair!” The only ones that hear or seem to want to understand this alien and painful feeling are what I’ve grown to refer to as special needs moms.Continue Reading

 Sensory Overload at School

Guests: Malissa MacArthur

This edition of Top of The Spectrum News looks into the potential sensory overload at school that is often associated with Asperger’s Syndrome. A classroom teacher discusses how these issues may impede classroom performance.

Samuel Allen Grand Marshal

Everyone loves a parade! Especially when it’s the annual abilitySTRONG Parade, San Antonio’s inaugural Disability Pride Celebration. It is a public expression of the belief that disability is a natural and beautiful part of human diversity in which people living with disabilities can take pride. We have all your information of where to park, parade route and a list of all the activities slated to participate in beautiful downtown San Antonio!

The Parade Theme Awareness….We’re Stronger Together, resonates strongly with this year’s Grand Marshal Samuel Allen. “Upon hearing of my Autism diagnosis, I learned that my voice mattered above all the medical noise of what I will never be able to accomplish. That voice would mold me into all I could be or it would stifle me into less than.”


Event Checklist:

2nd Annual abilitySTRONG Parade
Saturday, October 26th, 2019
9:00 am  – 10:00 am
Downtown, San Antonio

Parade Route: Avenue E & East Houston St. in front of First Presbyterian Church and Express News Bldg. South on Avenue E, West on Houston St. North on Flores St., West on Travis St., South on San Saba, East on Commerce St., South Pecos-La Trinidad and into the UTSA Cattleman Square parking lot.

Event Parking: Accessible shuttle services will be available between all of the ​lots below and Market Square from 7am – 2:30pm.UTSA D1 & D2 Lots
Employee A and B, and unmarked surface spaces.
*UTSA Geo Development Lot (On San Saba between Dolorosa & W. Nueva)
*Washington Square Lot (Santa Rosa & Nueva/Dolorosa)
*Washington Place Lot (Next to La Quinta on Dolorosa & South Santa Rosa)
*City Parking Lot (PAID PARKING Parking is available in the City Parking lot at Dolorosa between Santa Rosa and Laredo)

Event Program

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Though driving with an Autism diagnosis is not for everyone, many do decide to obtain their driver license and go on to live independent lives. Aspergers101 teamed with Dr. Temple Grandin to provide helpful information when considering if driving is for you, or your teen.

Long before driver education, Temple suggests first mastering your skills by practicing on a bicycle (coordination, motor skills). Then tackle driving in a safe remote area such as the country or large parking lot. You’ll begin mastering such challenging tasks, such as multi-tasking, prior to any driving on congested roadways.

One suggestion she has is that before you take a driver education course, you need to find a safe place and practice, and after that, practice even more! Getting the ‘knack’ of driving includes working on your coordination, motor skills, and multi-tasking which all come into play when learning to drive, even more so for those on the autism spectrum.

Anxiety can often be reduced (for the driver with Autism) by lots of driving practice in a safe remote location.  

– Dr. Temple Grandin

Once you’ve mastered working the brake, blinker, gas and other essential tasks while driving, you’ll then be ready to be thrown into a group/driver education training.Continue Reading

Just like physical characteristics and personalities, we all have different taste palates. Are you a sweet-tooth person? Do you enjoy bitter or sour? Are spicy foods appetizing to you? Well, individuals diagnosed with Asperger’s have additional components that they factor in when deciding if they like a food or not.

They may have a texture component like crunchy or soft. What about a color component like only yellow foods or green foods? Food temperature can also help determine if they are willing to taste that food.

Due to the added components that have to line up before making a decision to taste a food item, the act of trying new foods can be an overwhelming event for someone with Asperger’s.

What can we do to help the process of trying and accepting new foods when working with someone with these difficulties? How can we place ourselves in their shoes and hopefully understand their view of new foods?

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Suspect Autism or Asperger Syndrome?

Tonight at 7pm (CST), we continue to offer you our year-end giving of information with the Aspergers101 Facebook Live-streaming Series! Tonight’s topic is one you might want to share with someone suspecting they, or their child, might have a form of Autism or Asperger Syndrome. It is as important to know one way or the other. Our guest speaker is Dr. Berenice de la Cruz, will she offers an overview and insight into the signs of autism. Additionally we will offer downloadables….there is no charge for admission! Just go to the Aspergers101 Facebook Page at 7pm (CST) tonight.

What: Suspect Autism or Asperger Syndrome?

Where: Aspergers101 Facebook Page

When: TONIGHT! 7p (CST) Monday October 21st

Why: Do you suspect someone you love has autism or Asperger Syndrome? This pre-recorded program explores the signs, the medical explanation, and the hardwired facts. Topics discussed will be the importance of diagnosis, grief, and moving forward with awareness. Hosted by Jennifer Allen & son Samuel Allen, Co-founders of Aspergers101. Special guest: Dr. Berenice de la Cruz, Ph.D., BCBA-D (runtime 1:31:18) Panel discussion follows.

Animal Shelter

Volunteering at an animal shelter is a great way for tweens, teens and young adults on the autism spectrum to practice and improve social and job skills. They also learn responsibility and a respect for animals. As visitors come into animal shelters to look at animals available for adoption, it’s the perfect place for teens to improve face-to-face communication. The experience they gain volunteering at an animal shelter molds them into more effective volunteers and prepares them for the workforce.

Animal Shelter

Volunteering at an animal shelter is a fantastic opportunity, especially for teens with Aspergers. It has been widely discussed that children, teens, and adults with Aspergers form strong bonds with pets, and can greatly benefit from animal companionship.

Their time spent volunteering will produce better outcomes (adoptions) if they have good communication skills. Here are some top social skills from my book to ensure teens maximize the chance of an animal getting adopted, and master important social and job skills:

1. Smile and Say Hello:

When you see another person, whether a co-volunteer, staff member or visitor, smile and say “Hello”. Your smile will set the tone for positive future interactions and brighten the person’s day. It may even lead to an animal getting adopted or a financial donation. It all starts with a smile!

I used to volunteer at an animal shelter walking dogs. Often I would be in the back of the shelter bringing a dog in or taking one out. There would be people in the back of the animal shelter looking for animals to possibly adopt. I would smile and say “Hello”. I’d ask if they had questions about any of the dogs I walked. Often they would. After telling them about the animals, I’d suggest they spend time with any animal they were interested in. About 70% of the time they’d end up adopting an animal just because I engaged them and was able to provide helpful information. You can do the same thing!

2. Turn Off the Electronics:

When you are volunteering, keep your phone at home, or turned off, on silent or vibrate mode, and out of sight. This is part of being a professional volunteer and lays the foundation for good work habits.

3. Say Please and Thank You:

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By: Rick Jacobs

 It is palpable, that moment when you tell someone or a group of professionals you are on the Autism Spectrum. As if you just vomited on their shoes, they get a look of shock and concern. Their speech patterns change. Their facial expressions alter. You are no longer the same person that was hired or that started the conversation.

Often, you hear things like “I never would have guessed,” “You don’t look Autistic,” or they simply start talking to you like you suddenly became a five-year old with a limited vocabulary and a hearing problem.

I am Autistic, I am not damaged, I am not less intelligent. I am just a little different than you are. I see things differently, experience things differently, and struggle with social conventions. 

I understand the complex, hyper-detailed volumes of information that I am surrounded by. I don’t understand corporate culture or how to conform to workplace norms. I understand strategy, nuance of facts, projections, and planning. I don’t understand the look on your face or if you are joking with me or not. I am flat in affect when listening and processing, which may look like I am checked out or not paying attention.

I am super sensitive to my surroundings and have intense feelings, but I don’t let them rule me. I seek facts, I want to know that what I know is true and correct, not that I am right. I have intense intuition and gut feelings, I just don’t act on it until I have examined the facts, seen the possible options and outcomes, and have a plan for mitigating potential issues. I love stupid loud crazy music concerts, but a loud social gathering or cubicle space stresses me out, so no, I don’t want to go to the bar to hang out after work.

The problem with being an older Autism Spectrum person in a corporate world is that you are either weird or a problem employee because you don’t socialize like everyone else or you are a special case that everyone must tiptoe around and tread lightly. I am also often seen as not promotable, because of the belief that I might not understand how to connect with people. Actually, I connect very well and quickly, except I am also very aware of BS and will call it out. Don’t lie to me. I know.

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Watch Dr. Temple Grandin at her Best! Livestreaming tonight 7pm (CST) on the Aspergers101 Facebook Page

Autism and My Path Through Life: Presented by Dr. Temple Grandin

7p (CST) Monday October 14th Dr. Temple Grandin has graciously given her permission to offer access to her talk at the Aspergers101 recent event in San Antonio, “Unlocking the Potential: An Evening with Dr. Temple Grandin”. You’ll have a front row seat to her speech: “Autism and My Path Through Life” recorded April 19th 2018 at the San Antonio Pearl Stable. We’ve heard Dr. Grandin speak on numerous occasions and believe us, she was on fire! The runtime 48:54 and we feel certain you will want to take notes…its our gift to you! You can access this free event on the Aspergers101 Facebook Page. The link is below.-Jennifer Allen/Founder Aspergers101

An Aspergers101 Exclusive with Artist Carl Parker

I happened upon the brilliance of Carl Parker by accident. He had engaged in a discussion on the Aspergers101 Facebook Page and his positive nature was very apparent among the sea of negative comments. Found out quickly that Carl is the real deal! His positive outlook and adult Asperger diagnosis proved to be a powerful combination when creating his artwork. Each piece tells a story that he narrates via blogs. He describes each creation with a beauty that allows it’s viewers a rare glimpse into his world. I know this was no accidental encounter. So proud to share with our readers the brilliance & artistry of Carl.

About the Artist: Carl Parker is a dynamic, Canadian artist whose work focuses on the life experience. His style is abstract expressionist. He creates thought-provoking and emotionally engaging works and explores the beauty and subtlety of both rural and urban life, having experienced both himself.  His art can be found in private and corporate collections throughout the world, including Canada, the U.S., Australia, New Zealand and Europe. To date, he has shown his work in various cities including Toronto, Calgary, Florence, Italy and Paris.  His piece, Rustic Place, can currently be viewed at the Ontario Legislative Assembly’s In Camera Dining Room. 

Aspergers101: Clearly you are an artist with great talent. What inspires you?

Carl Parker: I began drawing at around age 8. I remember using a Spider-Man comic and being on my bedroom floor on my stomach. I was fascinated by how wonderful the character was drawn, so I attempted it myself. I was hooked. I’ve always been inspired by the human form. Over time, I would let my own style to develop with my painting of figures. I’m inspired by showing the emotions and complexities of us humans in my own, individual painting style.

Carl Parker shown with his work “Rustic Place” which is currently on display in the Ontario Legislature’s In Camera Dining Room.

Aspergers101: Upon learning you were diagnosed with Asperger Syndrome, did this affect your art in any way? Do you think it plays a part?

Carl Parker: I feel the Asperger’s plays a part in my unusual style. It pushed me to always be different in everything I do. This always felt like a sense of healthy pride for me, and never a weakness. To me, the Asperger’s is absolutely was not a negative. It gave me ambition to be a good artist. My late-in-life diagnosis was good for me, I wanted to know, and have since become a very level and successful person in this beautiful world of ours. Nobody paints like me. That makes me smile.

The person on the spectrum CAN experience triumphs of massive proportions. They CAN contribute important things to the world.

Carl Parker

Aspergers101: How would you describe the meaning in your paintings…are they connected?

Carl Parker: When someone sees and/or feels something in my art, I have done my job. I’ve contributed something and when the viewer connects with the piece, I feel joy and excitement because I’ve translated a piece of life, effectively in a powerful way. When a person has Asperger’s, they can often feel the need to isolate themselves from people and society in general, but with my art, I can connect with people. This is huge in such a healthy and progressive way. For me, my art is actually therapy. They say people with Asperger’s have a hard time showing their emotions and seem cold. In my paintings, people find emotion. It’s a magnificent thing when emotion is found, both for me and the viewer. I’ve noticed my art has the power to transcend all worries, hang-ups, negativity, and the pointless aspects of the trivial sort of mind. All pettiness begins to fall away. How brilliant this is.

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Depression, Aspergers, Help, Resources

It is said that 40 million Americans live with an anxiety disorder, which is more than the occasional worry or fear. We all experience anxiety to some level. Anxiety in children is common when separated from their parents or from familiar surroundings. However there is a type of anxiety that is more severe and may be misdiagnosed. Anxiety left unchecked or treatment may become paralyzing to everyday life.

Below we’ve gathered several lists for you. What does anxiety look like? How can it manifest, when is it critical to consult a doctor and what methods are available to self calm. Here we go….

Often, anxiety disorders involve repeated episodes of sudden feelings of intense anxiety and fear or terror that reach a peak within minutes (panic attacks). These feelings of anxiety and panic interfere with daily activities, are difficult to control, are out of proportion to the actual danger and can last a long time. You may avoid places or situations to prevent these feelings. Symptoms may start during childhood or the teen years and continue into adulthood.

Depression, Aspergers, Help, Resources

Examples of anxiety disorders include generalized anxiety disorder, social anxiety disorder (social phobia), specific phobias and separation anxiety disorder. You can have more than one anxiety disorder. Sometimes anxiety results from a medical condition that needs treatment.

According to research from the Mayo Clinic, several types of anxiety disorders exist:

  • Agoraphobia (ag-uh-ruh-FOE-be-uh) is a type of anxiety disorder in which you fear and often avoid places or situations that might cause you to panic and make you feel trapped, helpless or embarrassed.
  • Anxiety disorder due to a medical condition includes symptoms of intense anxiety or panic that are directly caused by a physical health problem.
  • Generalized anxiety disorder includes persistent and excessive anxiety and worry about activities or events — even ordinary, routine issues. The worry is out of proportion to the actual circumstance, is difficult to control and affects how you feel physically. It often occurs along with other anxiety disorders or depression.
  • Panic disorder involves repeated episodes of sudden feelings of intense anxiety and fear or terror that reach a peak within minutes (panic attacks). You may have feelings of impending doom, shortness of breath, chest pain, or a rapid, fluttering or pounding heart (heart palpitations). These panic attacks may lead to worrying about them happening again or avoiding situations in which they’ve occurred.
  • Selective mutism is a consistent failure of children to speak in certain situations, such as school, even when they can speak in other situations, such as at home with close family members. This can interfere with school, work and social functioning.
  • Separation anxiety disorder is a childhood disorder characterized by anxiety that’s excessive for the child’s developmental level and related to separation from parents or others who have parental roles.
  • Social anxiety disorder (social phobia) involves high levels of anxiety, fear and avoidance of social situations due to feelings of embarrassment, self-consciousness and concern about being judged or viewed negatively by others.
  • Specific phobias are characterized by major anxiety when you’re exposed to a specific object or situation and a desire to avoid it. Phobias provoke panic attacks in some people.
  • Substance-induced anxiety disorder is characterized by symptoms of intense anxiety or panic that are a direct result of misusing drugs, taking medications, being exposed to a toxic substance or withdrawal from drugs.
  • Other specified anxiety disorder and unspecified anxiety disorder are terms for anxiety or phobias that don’t meet the exact criteria for any other anxiety disorders but are significant enough to be distressing and disruptive.

Parents should be alerted to the signs so they can intervene early to prevent lifelong complications. The American Academy of Child & Adolescent Psychiatry offers you different types of anxiety in children.

Symptoms of separation anxiety include:

• constant thoughts and intense fears about the safety of parents and caretakers

• refusing to go to school

• frequent stomachaches and other physical complaints

• extreme worries about sleeping away from home

• being overly clingy

• panic or tantrums at times of separation from parents

• trouble sleeping or nightmares

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The Asperger/Autism Network has adopted the term Asperger profile to describe a range of neurological differences characteristic of over one percent of people in the United States and world wide. You may already be familiar with the term Asperger Syndrome, an autism spectrum diagnosis given to people with a specific constellation of challenges. We have chosen to retire the pathologizing word “syndrome,” because it fails to acknowledge that:

  • Many people with Asperger profiles also have striking abilities, talents, and positive traits.
  • Traits are not fixed or static; with education and support, people’s brains, behaviors, and skills can change over time.
  • Judgments about people’s abilities are subjective; what seems like a challenge in one environment may be an asset in another context.

Dr. Stephen M. Shore (a former AANE Board President) says, “When you meet one person with Asperger’s — you’ve met one person with Asperger’s.” Although people with Asperger profiles may share a common cluster of traits, each person is unique, and his or her life course is highly variable. Each person’s traits vary in number and intensity, and their expression may vary at different developmental stages or in different environments. Like multi-colored yarns woven together into tapestries, the unlimited possibilities for trait combinations produce a wide variety of unique outcomes.  

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