Aspergers101 to Retire

A Farewell from Founder Jennifer Allen

The office of Aspergers101 (l to r) Jennifer Allen and son Samuel consult
Photo: Kin Man Hui /San Antonio Express-News

It is with a grateful yet pricked heart that I announce my retirement of Aspergers101 effective, today December 31st, 2019. The timing is right as we leave accomplishing more than our small family-run organization is able to propel any further. We will be handing off a large portion of Aspergers101 to our Texas Governor’s Committee on People with Disabilities who will graciously keep our “Driving with Autism” Texas initiative thriving and permanently available on their website to Texans and all states nationwide, beginning in January 2020.

When we started the work of Aspergers101, many years before it became a registered 501c3 non-profit organization in 2014, our son Samuel was in elementary school and struggling as there were little to no resources to learn about Asperger Syndrome. I felt as though me and my family had been crashed and deserted on a small island with little resources on survival. Navigating Autism wasn’t just new to us, the medical community had only begun to turn their attention toward this often overlooked, misdiagnosed condition. I quit my full time job and immersed myself in understanding Autism Spectrum Disorders. I immersed myself in my family. From that difficult time grew a love toward those struggling as we did. The heartbeat of Aspergers101 has always been to the rhythm of my desire to make available the information I never had with Sam. It is you who inspired Aspergers101.

We’ve included several downloadables of information we’ve published on Asperger Syndrome over the years and hope you take advantage by keeping them for yourself and/or sharing with someone in need!

Jennifer Allen/Founder Aspergers101

Fast forward to today at the eve of 2020 and there are many autism resources available for you than ever before. Movies, TV shows, websites, clinics, employers, law enforcement and schools now have a better understanding (and accommodation) of those on and around the autism spectrum. We’ve got a long way yet to go… but have come quite a distance in the past decade. Our son Samuel is now 24 years old, college graduate, driving and thriving with full time employment in IT at H-E-B! As our family takes another fork in the road toward Sam’s independence, it is time that we must part our journey together. It lasted longer and went much higher and further than I could have ever imagined, but I pass the baton off to the next trailblazer whose time, endurance, funds, resources and age enables them to serve. There are so many excellent organizations geared toward autism and asperger syndrome and that is why I am certain of the time to step aside and wish you the very best on your continued journey!

What’s Next?

“A look forward” at the end of this blog, will offer an explanation for how Aspergers101 will live on. However, before we look forward, I invite you to read on and take a look back at all we’ve been through together over the past decade! It’s been quite a journey we’ve taken together. We’ve included several downloadables of our information we’ve published on Asperger Syndrome over the years and hope you take advantage by keeping for yourself and/or sharing with someone in need! Below offers you a bullet-point glimpse at the highlights of Aspergers101 and the outreach that exceeded our vision. This includes conferences & meet-ups with so many of you, televised broadcasts, our endearing friendship & partnership with Dr. Temple Grandin, the making and airing of our family documentary “Coping to Excelling”, the 2 Texas Legislative successes and oh so much more!

A Look Back


Our Documentary “Coping to Excelling: Solutions for School-Age Children Diagnosed with Autism or Asperger Syndrome”

Coping to Excelling is a one-hour documentary shedding light on the topic of Autism and Asperger’s Syndrome in school-aged children. Written and narrated by Jennifer Allen, the Mother of a son with Asperger’s, this engaging program allows the viewer to see through the eyes of those on the high end of the autism spectrum while getting advice from experts. Features include: 3-D animation, original music from Herb Allen and Rudy Gatlin, interviews with Dr. Temple grandin and Dr. Tony Attwood and classroom reenactments. A lesser known fact: the music to the documentary did not come easy for me. My husband Herb made it easy when he pulled out his guitar and had written an instrumental song he so passionately titled: Sam’s Song. He wrote it with minor and major chords untypically played together to display the unusual beauty found in his son with autism. It was that moving piece of music that country artist Rudy Gatlin (Gatlin Brothers Band) and Randy Willis took and created the soundtrack to Coping to Excelling.

You can hear Herb’s simple rendition of “Sam’s Song” here.

Herb Allen and his Guitar
“Sam’s Song” . Written and performed by Herb Allen. A song he wrote to musically describe the overwhelming love for his son upon learning of his Autism dignosis.

San Antonio Express News: Documentary Helps in Coping with Autism and Asperger Syndrome by Richard Marini

If you would like to purchase a copy of Coping to Excelling: you have only a couple of days to order here.

The Aspergers101 Website

We humbly began over 6 years ago with appx 120 page views monthly. Today, Aspergers101 (according to Google Analytics) assisted over over 40,000 people monthly!

WOAI News 4: Mom Launches New Website March 25th 2014
Aspergers101 Web developer Yusuf Chowdhury creates with Founder Jennifer Allen
An early look at Aspergers101 Homepage at launch. Our site improved it’s reach and navigation over the years!
Staff and Volunteers format the mission and values of Aspergers101 during the Planning Session

The Story Behind the Logo

The story behind our logo: “I painted this abstract picture to show neurotypicals what it feels like to have Aspergers Syndrome. At the time, I was enrolled in Art Appreciation I at Northeast Lakeview College. One day after class, I was at home and suddenly felt like painting, so I got some brushes, a canvas, and some acrylic paint and began to paint while envisioning the picture and its message in my mind. The black and white background represents how aspies tend to see the world in a black-and-white perspective and that we tend to act monotonous. The colors inside the head represent how our minds are bursting with extraordinary ideas. The white lines above the head represent how when we try to say what’s on our minds, it tends to get distorted by our social awkwardness.” by: Samuel Allen

“Driving with Autism” Texas State Initiative

Texas Governor Greg Abbott endorses Aspergers101 “Driving with Autism” Texas Initiative

Jennifer Allen/Founder & CEO of Aspergers101 and Texas Driving with Autism initiative, speaks at recent SAPD Press Conference.

The Strength of the Trailblazing “Driving with Autism” Texas initiative is 3-Fold:

1) Communication Impediment on Driver License & State ID – Communication Impediment with a Peace Officer is a restriction code now offered on Texas State ID and Driver License for those wanting to alert law enforcement of a challenge with communication. This option is marketed to Texas citizen via PSAs airing statewide as well as tri-fold brochures and posters (Spanish/English) in all Texas DPS Driver License Offices. 

Texas Transportation Code §521.125 allows the Texas Department of Public Safety to include a notice on the driver license or identification card  of those who indicate they have a health condition that may impede their ability to communicate with a peace officer.

The health condition must be supported by a written statement (Download Physician’s Statement form DL-101) from a licensed physician and presented at the driver license office before the communication impediment notice may be included on the back of the driver license or identification card.

You may go to the Texas DPS website for forms here:  TX DPS- Driver License – Communication Impediment with a Peace Officer  

Autism PSA – Samuel Allen (Aspergers101)
Deaf PSA – Emma Faye Rudkin (Aid the Silent)

2) Law Enforcement Training in TCOLE – In an effort to train all Texas Law Enforcement agencies on understanding persons with a Communication Impediment, Jennifer Allen and Aspergers101 has teamed up with the Texas Governors Committee on People with Disabilities in writing and producing video and training modules now published and available to all law enforcement agencies through the Texas Commission on Law Enforcement (TCOLE).

3) Communication Impediment in TLETS – The option for disclosure of a communication impediment when registering a vehicle through the Texas DMV. If selected, Communication Impediment will be privately placed in the Texas Law Enforcement Telecommunication System (TLETS) thus alerting the officer of the challenge PRIOR to approaching the vehicle in a pull-over scenario.   Form VTR-216 must be completed by a licensed physician if the applicant has a physical health condition or a licensed physician, licensed psychologist, or a non-physician mental health professional if the applicant has a mental health condition. Form VTR-216 is available online at www.TxDMV.gov or you may click and download Form VTR-216 here.


Asperger Awareness Brochure Series – Distributed locally, statewide & worldwide

Informative tri-fold brochures have made their way into schools, homes, work, churches and even Texas state law enforcement offices. The goal to provide information proved valuable when placed directly into the hands of those needing it most. Much of our funding went toward this end as we felt knowledge was just the beginning and a great way to start your journey. Below were just some of those brochures you helped provide to others!


“From Diagnosis to Independence” Livestream Series with SA Public Library

This free Workshop Series focused on first understanding then excelling with Autism or Asperger Syndrome throughout the Summer of 2017. Partnering with the San Antonio Public Library, each workshop was live streamed live by San Antonio’s WOAI News 4 and made available (at no charge) thereafter on Aspergers101 website. Hosted by Jennifer Allen, Founder of Aspergers101, a well known team of autism experts were assembled (and those living successfully on the spectrum) provided viewers 4 live stream sessions covering the topics of:

1) Diagnosis, 2) Education, 3) Social Development  4) Independent Living.

The uniqueness is offering this series for free with a live Q & A after each session in which patrons have asked our expert panel questions (recorded) pertaining to Autism/Aspergers.


Law Enforcement Training

Standard Law Enforcement Training on mental disorders is typically taught during the required 5 hours of training per year. Standard training for mental disorders does not differentiate the more aggressive disorders such as Bipolar Disorder, psychotic, and Intermittent Explosive Disorder from the non-aggressive such as Autism. That is why we needed a more efficient and accurate training on A.S.D. because persons with Autism and Asperger Syndrome are increasing in numbers and must feel free to go on to drive and lead independent lives.

There is a greatly feared scenario among families who have a child diagnosed with autism spectrum disorder (ASD)or Asperger’s syndrome. It goes like this: A young man diagnosed with high-functioning autism is pulled over for speeding. As the trooper approaches the vehicle the young man’s anxieties kick in. Since his disability is not apparent, the officer notices the man fidgeting and deduces shiftiness or guilt, then proceeds to suspect something is wrong. When he questions the young man’s behavior by asking if something is wrong, the autistic mind takes the statement literally and the young man begins to tell the officer, “Yes, something is wrong. You pulled me over and I’m supposed to be at work in 10 minutes!” The officer mistakes this truth as flippant behavior and proceeds accordingly. The situation escalates as the misinterpretation is misconstrued for defiance. As the number of citizens diagnosed with high-functioning autism or Asperger’s syndrome continues to increase, Aspergers101 offered training for law enforcement including considerations for police when encountering a person with autism during a traffic stop. Together, we worked alongside the Texas Department of Motor Vehicles, Texas Department of Public Safety and the Texas Governor’s Committee on People with Disabilities and changed the laws in the State of Texas to reflect this need.


Workshops & Conferences

Training to better understanding of Autism and Asperger Syndrome took us all over the state and beyond. Sam offered a first hand glimpse into Autism without abandon! Charlie took part to help with siblings trials and tribulations and triumphs. Herb offered his insight into fathering a son with autism. This training included: Schools, Region Centers, Colleges, In-House Professional Development, Texas State Autism Conferences/Region Education Workshops, Law Enforcement Agencies, Medical Student Workshops, Churches, Employer training and much more.

Many children carrying the diagnosis of Autism Spectrum Disorder or Asperger Syndrome, exhibit challenges in the areas of sensory, academic and social skills at school. These challenges are worrisome if not debilitating for the student, the parent and the educator who look for supports to overcome these hurdles. I shared our family’s personal journey from kinder through college, while providing applicable classroom techniques collected from experts in the field of autism. This training provided an essential foundation of understanding the autistic mind and how that factors into a school setting. Bottom line….how to recognize and successfully navigate ASD in the classroom. This training was most important to me personally as this was so important to catch autism early on.


“Celebrating the Uniqueness of Autism” Texas Televised PSA Series  

Dr. Temple Grandin – Celebrating the Uniqueness of Autism PSA Series
Grant Manier – Celebrating the Uniqueness of Autism PSA Series

Samuel Allen – Celebrating the Uniqueness of Autism PSA Series

Legislation(s) Passed: HB#1434 (Driving with Autism materials in DPS Offices) & The Samuel Allen Law SB#976 (Communication Impediment DMV designation option in TLETS)

HB 1434
Aspergers101 “Driving with Autism” Committee Pictured (l to r) Dr Jane Lynch, Amanda Haas, Dr. Louise O’Donnell, Julie McCoy, Grant Manier, Jennifer Allen, Samuel Allen, Dr. Temple Grandin, Ron Lucey, Nancy Van Loan , Gabriela Lemos, Chuck Palcer

Communication Impediment with a Peace Officer is a restriction code now offered on Texas State ID and Driver License for those wanting to alert law enforcement of a challenge with communication. This option was marketed to Texas citizen via Public Service Announcement airing statewide as well as in tri-fold brochures and posters (Spanish/English) in all Texas DPS Driver License Offices. It was placing the materials in the DPS Offices that took legislative action. HB 1434 was carried by Ron Simmons Office and passed during the Texas 85th Legislative Session. Here is a behind the scenes video we shared on social media sites that made light of the time spent at the capitol!

Passage of Texas House Bill 1434 – “I’m Just a Bill”
The poster now framed and placed in all Texas DPS Offices
SB 976: The Samuel Allen Law

This was an important part of the Driving with Autism initiative and took over 4 years to pass. Sam and I first met with the TExas Executive Director of DMV, Whitney Brewster, to suggest the low cost option of protecting drivers with autism from miscommunication from law enforcement. This would be done with a code that no one could see except the officer pulling the person over. We worked with Texas Senator Bryan Hughes to submit SB 976 to pass during the 86th Texas Legislative Session. Here’s how it works. The option for disclosure of a communication impediment when registering a vehicle through the Texas DMV. If selected, Communication Impediment will be privately placed in the Texas Law Enforcement Telecommunication System (TLETS) thus alerting the officer of the challenge PRIOR to approaching the vehicle in a pull-over scenario.   Form VTR-216 must be completed by a licensed physician if the applicant has a physical health condition or a licensed physician, licensed psychologist, or a non-physician mental health professional if the applicant has a mental health condition. Form VTR-216 is available online at www.TxDMV.gov or you may click and download Form VTR-216 here. The law passed and became effective in Texas September 1st 2019.

As a Texas Driver diagnosed with Autism, Samuel Allen delivers a powerful Testimony on behalf of SB 976 before the Texas Senate Transportation Committee during the 86th Texas Legislative Session

San Antonio Event at the Pearl – Unlocking the Potential w/Dr. Temple Grandin, Tina James/HEB, Ron Lucey/GCPD, Dr. Gail Saltz/Power of Different (Sold Out)

Samuel and his mentor, Dr. Temple Grandin discuss Driving with Autism

Media Support and Outreach

Always grateful for the means of outreach. Social media played a huge role as did TV, radio and print. An ongoing partner quick to respond where autism was/is concerned has been John Seabers, Senior Vice President / Corporate Group Manager at Sinclair Broadcast Group. His devotion to community has been apparent all these years through a partnership that gained thousands access to information we provided. Below is a brief journey afforded us through the eyes of the media.

The Rivard Report: by Roseanna Garza/San Antonio Family’s Autism Education Efforts Lead to New State Law

There were so many more milestones but as I write this blog, my WordPress is informing me I am maxed out on video space! Bottom line: What a journey!

As you know, Aspergers101 mirrored my family’s trek with Autism except we happened to make that journey with you and thousands of families all over the world experiencing ASD. Together we learned by adhering to the Aspergers101 mission & motto:

“To empower and educate individuals with High-Functioning Autism and Asperger Syndrome, their advocates and the community so that we can provide optimum support and expanding opportunities for lifelong growth and fulfillment.”  

Acknowledgements

Make no mistake, Aspergers101 is a non-profit and has only been sustained by those who so generously gave. It takes money to operate a non-profit. Just minimal existence is costly. Fundraising has been my least favorite task as the Founder and Executive Director, but a necessary one. My graitute runs deep for the individuals who made sure it kept going! First to my husband Herb, who took on the financial strain to support all 4 of us while I stayed home seeking answers during those early years. He, Sam and Charlie are the foundation and inspiration of Aspergers101. They all made notable sacrifices and gave of their time to share and encourage at more events than I can count. They did this out of love and compassion for those they never met and did so without financial compensation. They have allowed me to disappear into my home ‘office’ for days at a time, writing curriculum, laws and articles without complaint. We gave, but oh how our family has been blessed! Gratitude goes to many of you who graciously gave at our events, online fundraisers or volunteered at events/workshops. Thank you as you kept us going! Know that we received the bulk of our ongoing funding from only a couple of people. These individuals (either would not wish to be acknowledged!) made sure Aspergers101’s had enough revenue to keep the information flowing. Both are strong women. Both are Moms who knew a free, online resource was necessary and they knew this from their own experience. There are no words for this kind of support except that these dear women genuinely live their busy and productive lives wanting to make a difference for others. Ron Lucey is the Executive Director of the Texas Governors Committee on People with Disabilities and was there to support and advance any initiative that would better the lives of those with Autism. He and his staff of 3 were an army of ‘doers’ that brought so much to you, without fanfare. Then there were those behind the scenes, that Aspergers101 contracted for their expertise, who brought you credible information on a daily basis for years! The foundation of Aspergers101 is in the content. It was important to offer you credible, useful information daily and our volunteer bloggers gave freely of their expertise (medical, education, parental and autism-related fields) and time. To Yusuf Chowdhury (Online Business Owners), Amanda Haas (UpWrite), Gerald Newton (Tri-Merge) and our senior editor since Aspergers101 inception, Gabriela Lemos, there was never a better team with greater heart than you! To our past and present Board of Directors, LaDonna Mack, Sandra Murphy and David Clapp…you led by your heart(s) and gave of your time.

Looking Ahead

This is the last entry on Aspergers101. Please download anything you would like to utilize or share as the website will remain online for just a few more days for you to do so! As mentioned earlier, the entire “Driving with Autism” initiative will live on through the graciousness of Ron Lucey and his team at the Texas Governor’s Committee on People with Disabilities. We are working together to make this a seamless transition and though there is a tease on their website now…know that by the end of January 2020 you will be able to access full information on their site! I feel confident this will give our “Driving with Autism” initiative the platform for sustainability and growth that will serve ours and generations to follow. It is a huge breakthrough that will be built upon bettering communications between law enforcement and those with autism, deafness and so many more diagnosis. Here is the web address:

Sustainability is a word that has popped up in our vocabulary over the past decade so I will use it in describing how Aspergers101 content lives on. All remaining funds will go toward purchasing and delivering our informative tri-fold brochures to educational agencies and autism organizations for distribution. Our autism training continues at UT Health San Antonio for doctors in training. Sam and I recorded a one-hour training that will live on offering doctors a glimpse of families living with autism. Our training is now published and will forever be available in the Texas Commission on Law Enforcement (TCOLE) offerings to all law enforcement agencies on better understanding those with autism, deafness in a pull-over traffic stop. In addition, grocery giant, H-E-B, will be absorbing the Aspergers101 employer training materials and I cannot think of a better organization to utilize our materials for ongoing use in their incredible “Bridges” program.

Most of all, Aspergers101 will be sustained through you. Hopefully some of the material has aided you in your journey and it does feel good that together, through education and knowledge, we’ve raised (and are raising) our children on the spectrum .

I am forever grateful to you and where we have journeyed together. My prayer for you, as we part ways and you continue your path of raising a child with autism or asperger syndrome: To remember that education is key, learn everything you can about your child’s diagnosis and address each issue as it arises. Day by day. Never compare yourself to others or what ‘might have been’. Look at the miracles surrounding you, they are there. Abandon those who are making you or your child’s life difficult. Seek and grow the abilities within your child, they have many. Choose your child, never society’s expectations. Breathe. You can do this! I leave you with my personal motto and one I attribute to all things accomplished…To God be the Glory!

Blessings, Jennifer Allen/Retired Founder & CEO Aspergers101

Aspergers101 FB Livestreaming Series: 7P TONIGHT!

Tonight at 7pm, we continue to offer you our year-end giving of information with the Aspergers101 Facebook Live-streaming Series. Tonight’s topic is one you might want to share with someone suspecting they, or their child, might have a form of Autism or Asperger Syndrome. It is as important to know one way or the other. Our guest speaker is Dr. Berenice de la Cruz, will she offers an overview and insight into the signs of autism. Additionally we will offer downloadables….there is no charge for admission! Just go to the Aspergers101 Facebook Page at 7pm (CST) tonight.

 

What: Suspect Autism or Asperger Syndrome?

Where: Aspergers101 Facebook Page

When: TONIGHT! 7p (CST) Monday October 21st

Why: Do you suspect someone you love has autism or Asperger Syndrome? This pre-recorded program explores the signs, the medical explanation, and the hardwired facts. Topics discussed will be the importance of diagnosis, grief, and moving forward with awareness. Hosted by Jennifer Allen & son Samuel Allen, Co-founders of Aspergers101. Special guest: Dr. Berenice de la Cruz, Ph.D., BCBA-D (runtime 1:31:18) Panel discussion follows.

San Antonio Family’s Autism Education Efforts Lead to New State Law

by: Roseanna Garza/Rivard Report
August 29th 2019

“A patrol officer driving on a local freeway came across a young man wielding a two-by-four in the middle of the inside lane as cars zoomed quickly past. Upon approaching him, the officer, whom SAPD declined to identify, quickly recognized the youth had a cognitive impairment and was not suffering from mental health or substance abuse issues.

Using communication skills learned from the Allens, the officer talked the young man into putting the piece of lumber down, and then helped him get off the freeway and return safely home.”

-San Antonio Police Chief William McManus  (for the rest of this story, click on the link above)

BONNIE ARBITTIER / RIVARD REPORT

How Big Is My Problem?

In everyday life, there are thousands of things happening. Some of these are big deals while some are little deals. Many people on the spectrum have a difficult time trying to differentiate “big deals” and “little deals.”; in other words, what TO make a big deal out of and what NOT TO. This whole “choosing your battles” is something that I still have a hard time comprehending.

A few months ago, I was in my third period chemistry class. My teacher was handing back a quiz that the whole class previously took. When I got my quiz back, I saw that I was marked off three points. I was confused because I checked my work multiple times and still got the same answer. Then, when my teacher recited all of the answers out loud, I proved my suspicions. I saw that my answers were correct but points were still deducted from them. Later that class period I went up to my teacher and respectfully asked him why I got points marked off. He looked at my answers and said, “Because they are wrong!”. I wrote down these three answers: “49.00, 52.00, 53.00.” He said that the correct answers were “49, 52, and 53.” I did not understand why he was marking me down points since my answers and his answers were equal. Before I go any further, the numbers were numbers of atoms, and atoms cannot be divided according to Dalton’s Atomic Theory. He told me that because I added the decimal and two zeros, I indirectly inferred that atoms could technically be divided. I was extremely upset but didn’t show it. I sat back down at my desk.

The next day, I had a meeting with my school case manager. I told her about what happened. With math and science being her strong suit, she understood my teacher’s decision. However, she also completely understood mine as well. I was so upset that I wanted to submit a district grade dispute! I would have usually gone through the department chair, but since my teacher is the department chair, that was not an option! I was so ready to file that paperwork and get my three points back! But then my case manager asked me “Is this a big deal or a little deal?”. After talking for a while, we decided that this was a little deal because it was only worth three points and, even if I got them back, I would still have to be in class for many months to come with a teacher that would dislike me because of the dispute.

These types of situations have come up in my life ever since I was a toddler and my parents and special education team have helped me come up with some things to do in order to determine if a scenario is a big deal or little deal, along with how to act on it.

I created an infographic that you may be able to use in order to demonstrate what problems are big and which problems are little. Check it out below!

On a more personal level, I force myself to reflect. This is usually hard for me to do since all I want to do is act immediately, but fortunately, I (through mistakes of acting too quickly) have learned how to stop myself. I ask myself if this particular problem is a big problem worth getting worked up over, or if it’s a smaller deal that I should just let pass over. I sometimes even get advice from my parents or special education team if my emotions are running too high at the moment and I am not able to think clearly and reflect. If I am really angry about something that I know is a smaller problem, I sometimes think about bigger problems that my peers are facing and realize how lucky I am to only be having this little problem.

If you are on the Autism spectrum: reflect, reflect, reflect! It really does pay off to slow down and calm down! I rarely make good decisions when my emotions are too high. I am learning to take the time to calm down and think things through before I decide how I should act.

If you are a parent: help your child come up with his/her own chart to help decide if something is a big or little deal.

If you are an educator: take the time to talk with your student if you notice that he or she is about to turn something little into something big when it doesn’t have to be. Help him/her to calm down and then talk through the issue. Don’t blow them off because you don’t see it as a big deal. Your student hasn’t come to that same conclusion yet!

Aspergers 101 Frequently Asked Questions

Yes, we've answered 101 of your questions about Asperger Syndrome!

Whether you are beginning to suspect your child (or yourself) might have a form of Autism or Asperger Syndrome, or you are already on your journey, this resource was compiled for you!

We polled the 101 top requested questions on Asperger Syndrome and put them in one place for those seeking information on High Functioning Autism or Asperger Syndrome! These questions range from the origins of Asperger Syndrome, the early signs all the way through adulthood. Some questions merited a one word response while others provide you with a detailed bullet-point answer. We would like to thank our underwriting sponsor: The Starfish Social Club for supporting and providing you this on-going free resource! To access Aspergers101 FAQ page either click on the ad below or find it  permanently located at the top of our menu bar on our website under the “Asperger Syndrome” tab. 

Click on above to go to 101 FAQ Page

 

Aspergers101 helps families cope with autism

San Antonio Express-News

(The following article by Staff Writer, Rene A. Guzman, originally ran in the San Antonio Express-News on November 19th 2018)

It’s been more than a dozen years since Jennifer Allen first learned that her oldest son, Sam, had Asperger Syndrome, now diagnosed as high-functioning autism. And still she remembers how fast her sadness turned to relief.

At last she knew why Sam, who was 10 at the time, always isolated himself from the other kids in class. Why he could never finish a sentence without losing his train of thought. Why despite being bright his grades suffered.

“I knew that I’d be able to understand my son a lot better,” Allen said. “It was a breakthrough.”

SA Gives story on Aspergers101, a San Antonio-based website resource for people with high-functioning austism and asperger syndrome. Jennifer Allen (left) founded the site, inspired by her son Samuel (right), who has been diagnosed with high-functioning autism. (Kin Man Hui/San Antonio Express-News)

It was also the beginning of a mission to help other families identify and understand Asperger’s, with Sam as both guide and inspiration for how to succeed with such a complex and often bewildering neurological condition.

“Eventually we got the hang of how to deal with my autism,” said Sam Allen, now 23 and about to graduate from college with a degree in engineering. “But we decided we wanted to give these other parents the opportunity to get the information that they need in order for their child to cope with their autism. We didn’t want them to be in the same position we were, when we were in the complete dark about autism.”

That’s why mother and son founded Aspergers101, a San Antonio nonprofit dedicated to educating and empowering all lives touched by Asperger’s and high-functioning autism.

Why High Functioning Autism Is Not “Easy Autism”

By Ethan Hirschberg

A few weeks ago, someone who had just learned about my blog through my temple came up to start a conversation with me. She wanted to learn more about me and my advocacy work. After talking for a few minutes, she commented that “I have it easy.” I was confused and asked for clarification, in which the response was “you know…glamorous Autism.” I was taken aback. Multiple emotions rushed through my head: anger, confusion, but also determination. I felt angry because this person has no idea what I go through on a daily basis and still had the guts to tell me that I had it “easy.” I was confused because I could not understand how someone could say something like this to me. Finally, I felt determined to keep writing and advocating because although there is an increase in understanding in this world, there is still so much more work to be done. I researched this idea of “glamorous Autism” and, to my surprise, multiple articles came up. This newer myth that I am now aware of needs to be squashed!

The Journey Through Autism

The Autism spectrum is diverse. Some individuals with Autism are nonverbal while some are high functioning savants. Each level of functioning within the Autism spectrum has its own set of unique difficulties. The difference between low functioning and high functioning is enormous and I realize that others have it much harder than I do. However, this does not mean that High Functioning Autism is “easy” or “glamorous”. High Functioning Autism has its own challenges that affect me on a daily basis.

TO READ THE REST OF THIS BLOG POST, WHICH INCLUDES 5 REASONS WHY HFA ISN’T “EASY,” PLEASE CLICK HERE TO VIEW IT ON THE JOURNEY THROUGH AUTISM!!!

Book Review: Uniquely Human: A Different Way Of Seeing Autism

By Ethan Hirschberg

As a teenager with High Functioning Autism, I have been trying to find a book written by a professional in the field that not only is interesting, but factual. When I say factual, I am talking about information that truly represents the mind of someone on the spectrum. No stereotypes, no misrepresentation, just pure knowledge. This past November, I found that book… Uniquely Human: A Different Way Of Seeing Autism by Dr. Barry M. Prizant, Ph.D., CCC-SLP with Thomas Fields-Meyer.

Let me start out by saying that this is the best book that I have ever read in my whole entire life (and I really mean it). Every single moment I was reading this book I couldn’t believe what I was reading. With decades of experience, Dr. Prizant really knows what he’s talking about. Dr. Prizant mentioned qualities of professionals who “get it.” He really “gets it.”

Uniquely Human: A Different Way Of Seeing Autism starts out by stating that the treatment of Autism is a largely unregulated enterprise. I completely agree. There are certain licensing requirements for licensed psychologists (Ph.D./PsyD) and board-certified behavior analysts (BCBA). But, there is no other agency checking up on providers making sure that they are doing the right things for the right reasons. Because of this, there are some professionals who unknowingly worsen the situation that they’re trying to help.

Autism Book Review

Dr. Prizant also states something that foreshadows the rest of the book. He says, “Autism isn’t an illness, it’s a different way of being human.” When I think of this, I think of a famous quote by Stuart Duncan, “Autism isn’t a disability, it’s a different ability.” Everyone is different in their own way.

Another thing that is mentioned in Uniquely Human: A Different Way Of Seeing Autism is the all too known but not used enough question… why? Dr. Prizant mentions that professionals who are working with children on the Autism spectrum need to ask themselves this. He states that many providers see what a behavior is and then try to eliminate it. What they should really be doing is being a detective and finding the truth about why someone is doing something. Once you determine this, proceeding with the right treatment is much easier to do. I personally have seen an aide to a special needs child repeatedly tell the child to stop humming, when in reality, this was a much needed and extremely important stim. He says that professionals who ask why are professionals who “get it.” People who “get it” must have empathy, the human factor, sensitivity, shared control, humor, trust, and flexibility. From what I have seen with Dr. Prizant’s writing, he truly “gets it.”

The last thing that really stood out for me when reading this book was the author’s take on social language. Dr. Prizant said that people with Autism have a hard time learning a social language. He then gives a genius analogy: learning a social language is like learning a second, foreign language to someone on the spectrum. It’s harder to achieve the same fluency level as native speakers. These native speakers are “typical” people while the foreign language applies to people with Autism. This gives me a whole new perspective on my troubles with social skills knowing that in a way, it’s a foreign language to me. Dr. Prizant said that in the real world, people with Autism are left to fend for themselves; navigating a reality that makes sense to everyone else but them. For individuals with Autism, comprehending the social world can mean living in a state of confusion. This is so true for me! There isn’t a day that goes by where I don’t get confused, stressed, and frustrated over my social skills. I have trouble seeing and understanding social cues, hints, sarcasm, facial expressions, etc, which makes it so difficult to understand what everyone else knows.

I recommend Uniquely Human: A Different Way Of Seeing Autism to anyone who is affected by Autism. I have not only gained insightful knowledge from reading this book but have been reminded that I’m not the only one. I especially encourage all educators and providers to read this one-of-a-kind book (it really helps). Thank you, Dr. Prizant, for not only providing me with the best book that I have ever read but for giving me more inspiration to better discover myself!

Unlocking the Potential: An Evening with Dr. Temple Grandin

Tickets Now on Sale!

Photo: Matt Nager Photography

It is with great enthusiasm that we will welcome Dr. Temple Grandin to San Antonio and South Texas during Autism Awareness Month, April 19th, for an insightful and encouraging evening titled: Unlocking the Potential. We can hardly wait!

Dr. Grandin will share her personal story and insights on how to prepare for a productive life of independence living with Autism. Attendees will also hear from Chief People Officer Tina James to learn how local industry giant HEB is launching an innovative program that utilizes the talents of those on the spectrum. Mr. Ron Lucey, the Executive Director of the Texas Governor’s Committee on People with Disabilities will open the evening with a message from our state’s capitol.  Asperger101’s Unlocking the Potential will be an evening well spent for those seeking encouragement and concrete guidance for living to the highest potential with Autism and Asperger Syndrome.

We hope you enjoy!     -Aspergers101

Evening Line-Up
5:30p – 6:30p 
VIP Meet and Greet with Temple Grandin, Tina James, and Ron Lucey
 
Hors d’oeuvres in the mezzanine catered by Page Barteau
(VIP Tickets Only)
  • Three cheese stuffed mushrooms topped with panko breadcrumbs
  • Fresh tomato, house pulled mozzarella and basil skewers drizzled with a balsamic reduction
  • Chicken wrapped in bacon and stuffed with jalapeños
  • Beef tenderloin sliders served on a yeast roll with raspberry chipotle
Book signing beginning at 6p
 
6:30p 
Doors open for general admission & continued book signing 
7:00p – 8:45p 
Speaker Presentations:
Jennifer and Samuel Allen
Co-Founders of Aspergers101 and Driving with Autism
  • Evening Co-Hosts
Ron Lucey
Executive Director of the Governor’s Committee on People with Disabilities
  • Equal Access to Independence (How Texas is leading the nation in supporting citizens who have diagnoses that could cause communication impediments with a peace officer on the road)
Gail Saltz, MD (special pre-recorded video)
Clinical Associate Professor of Psychiatry at the New York Presbyterian Hospital Weill-Cornell School of Medicine and a psychoanalyst with the New York Psychoanalytic Institute
  • Pre-recorded video: The Power of Different (Dr. Saltz will not be present but has recorded a special video for the event referring to her latest book, an illuminating and uplifting examination of the link between brain differences and aptitude)
Tina James
Chief People Officer at HEB
  • Bridges: Connecting Extraordinary People to Career Opportunities (Announcing a new program placing college graduates with High-Functioning Autism or Asperger’s in the IS department at HEB)
Temple Grandin, Ph.D.
Inventor and Professor of Animal Science at Colorado State University
  • Diagnosis to Adulthood: Preparing for a Life of Independence (Dr. Grandin’s personal story and guidance in building a life of independence for those with Asperger’s)

Drivers with autism encouraged to put extra info on license

By: Wes Rapaport

As the Aspergers101 “Driving with Autism” initiative sweeps Texas, we are thrilled to have been featured in a news report by Nexstar Broadcasting reporter Wes Rapaport.

AUSTIN (KXAN) — A new public service announcement was unveiled urging drivers with autism to consider applying for a note on their driver’s license that informs law enforcement about potential interaction challenges. The video message informs Texans about the “communication impediment” restriction code.

Samuel Allen, who is on the autism spectrum, said having the marker on his driver’s license feels “like a big safety net,” and makes him more comfortable when he gets in his car.

“If I showed [it] to the officer, they are going to know that I have autism or some kind of impediment that will keep me from communicating properly with the officer,” Allen explained.

An example of a "communication impediment" note, listed on the back of a sample driver license. (File photo)

An example of a “communication impediment” note, listed on the back of a sample driver license. (Jennifer Allen photo)

Legislation was passed in the last session that took effect in September, allowing brochures and posters highlighting the “communication impediment” code, in large part due to work done by Aspergers101, which Allen’s mother Jennifer founded.

“I’m just a mom of a son with autism that I want him to be protected, and it just happened to be there are open doors to make policy changes that make commonsense,” Jennifer Allen said. She added that she worried about her son being pulled over or having some other need to interact with an officer, and not having the tools necessary to successfully navigate those challenges.

“We can’t rely on other cards and things that they can reach and give to an officer of the law because that could be misconstrued as they’re reaching for a weapon, so if it’s directly on the driver’s license then that is indeed a safety net,” she stated.