Ode to the Special Needs Mom

Neurotypical Mom, as a Special Needs Mom your world is foreign to me. Rotating seasons of soccer, cool moms club, overnight parties, and college sororities comprise a universe outside my own. Church youth camps and activities that have the word “team” in them are just painful reminders that I have a special needs child. Your child is included, mine is not. And I must find a way to turn these negatives into positives for the sake of my child’s future.

Super Mom, Special needs mom

Raised competitive from a small town with sports and cheerleading in a world that didn’t include Autism makes it even more difficult to confess these surprising emotions. I’m not a whiner but what I want to do is shout “It’s not fair!” The only ones that hear or seem to want to understand this alien and painful feeling are what I’ve grown to refer to as special needs moms.

View Entire Summer Series: From Diagnosis to Independence

One year ago, Aspergers101 launched a Summer Series on Autism in conjunction with the San Antonio Public Library System. WOAI-TV live-steamed all four conferences and area experts on Autism participated in a panel discussion at the conclusion of every power-packed workshop.

Kicked off by Ron Lucey with the Texas Governor’s Committee on People with Disabilities and announced by Ramiro Salazar, Director of SA Public Library System at the Press Conference, it was a huge endeavor that allowed free access to information on Autism.

This is community and teamwork at it’s finest!

We want to share all four sessions with you.

The topics are as follows:

  1. Diagnosis 2. Social Development 3. Choices in Education and 4. Independent Living

Press Conference Announcing Aspergers101 Summer Series with the San Antonio Public Library  Asperger Syndrome: From Diagnosis to Independence.
May 3rd 2017 10:30a San Antonio Public Library Downtown

SUMMER SERIES VIDEO LIBRARY

Do you suspect someone you love has autism or Asperger Syndrome? This program explores the signs, the medical explanation, and the hardwired facts. Topics discussed: signs of autism, the importance of diagnosis, grief, and moving forward with awareness. Hosted by Jennifer Allen, Founder of Aspergers101 and her son Samuel Allen. Special guest: Dr. Berenice de la Cruz, Ph.D., BCBA-D, Chief Operating Officer, Autism Community Network. MORE: the San Antonio Public Library and Aspergers101 announced a partnership and upcoming four-part educational series that will focus on understanding and excelling with high-functioning autism or Asperger Syndrome. A well-known team of autism experts (many of whom live successfully on the spectrum) will participate in discussions about important related topics. A question and answer session with the panel experts will follow each night. The series will be presented by Jennifer Allen, Founder and CEO of Aspergers101. Aspergers101 is a local nonprofit dedicated to empowering and educating individuals with high-functioning autism and Asperger Syndrome, their advocates, and the community.

#1 Diagnosis (May 9th 2017)

Download the pdf Powerpoint Presentation on “Diagnosis” here: Diagnosis

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#2 Social Development (June 13th 2017)

Download the pdf Powerpoint Presentation on “Social Development” here: Social Development

Resources: App’s, ibooks and videos on non-verbal communications Momentum Research , Social Quest, Model Me Going Places, The Social Navigator are all at a cost but seem to rate well.

Unlocking the Potential: A Day with Dr. Temple Grandin

Part 1: Driving with Autism: Luncheon with SAPD

Last week Aspergers101 was proud to host a day of Autism awareness and enlightenment in San Antonio Texas. First we co-hosted a luncheon alongside San Antonio Chief of Police, William McManus regarding the
Driving with Autism statewide initiative. Over 25 law enforcement agencies were represented as well as city officials.  All came together to hear about the new Texas driver license restriction code, Communication Impediment with a Peace Officer and how that may look in a pull-over scenario. Though Dr. Grandin’s plane was delayed, she made her entrance to speak to the officers just as the luncheon drew to a close..a great way to end on a high note!


SA Police Chief William McManus (R) discusses Driving with Autism with Aspergers101 Senior Editor Gabriela Lemos (L)

Jennifer and Samuel Allen present understanding Autism and those with a communication challenge.

Dr. Temple Grandin stands alongside SAPD law enforcement


Jennifer Allen and Samuel Allen presented the impact of the Autistic Brain when encountering drivers displaying the new code. Below lists some of the topics covered to the full house of law enforcement officers:

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

Dr. Temple Grandin spoke on the importance of allowing the person with Autism the time to respond. “A person with a communication impediment is like a computer that slowly scrolls to catch up. You’ve got to allow them time respond when confronted with an officer of the law.”

 

Interview with the Writer of TV Series “Asperger’s High”

If you haven’t seen it, here is “Asperger’s High”, a mock drama situated around a fictitious sitcom as seen on youtube.

Sam and Jennifer interview its very talented co-writer and actress, Leslie Tsina, below. Tsina talks about the making of the mock drama “Aspergers High” with some behind-the-scene tidbits, reactions from the autism community and her future projects.

Contact Information:

Lesley Tsina
www.lesleytsina.com
www.devastatorpress.com
www.youtube.com/user/golesley

Jason Axinn, our director:
http://www.funnyordie.com/jaxinn

Ben Siemon www.bensiemon.com/twitter: @benjaminjs

Give the Gift of Information!

DVD: "Coping to Excelling: Solutions for School-Age Children Diagnosed with Autism or Asperger Syndrome"

Excellent basic overview of High Functioning Autism and Aspergers Syndrome!

The Coping to Excelling documentary sheds illuminating light on the topic of High-Functioning Autism and Asperger’s Syndrome in school-aged children. Narrated by a Mother of a son with Asperger’s, this engaging program allows the viewer to ‘see through the eyes’ of those on the high end of the autism spectrum while getting advice from experts such as Dr. Temple Grandin, Dr. Tony Attwood, Jennifer McIlwee Myers, Billy Edwards and many more!

“I would strongly recommend the Coping to Excelling DVD not only for parents, especially those of a newly diagnosed child, but also for teachers and professionals!”

– Dr. Tony Attwood

 

 

 

The DVD, Coping to Excelling, is divided into 5 chapters each lasting just over 10 minutes. The chapters may be viewed independently or the entire Documentary (lasting 68 minutes) may be viewed in it’s entirety.

Chapters include:

  • Understanding High-Functioning Autism or Asperger Syndrome – a broad overview
  • The Family Unit – The importance thereof
  • Choices in Education – Pro’s and con’s of all methods
  • Bullying – re-enactments and solutions
  • Social Development – suggestions and tools from the experts

 

Purchase Here

 

 

Product details

Apart From the Crowd: Isolation in the Early Years of Diagnosis

Even before the official diagnosis of Asperger’s Syndrome, we knew our son Sam walked apart from the crowd. His early intense interest in a subject matter, and not in his peers, was the perfect mix for oddity starting the early sociable elementary years.

Aspergers Apart from the crowd

While we, as Sam’s parents, grew to walk alongside (and later celebrate) the unique perspective Sam had on the world, it was me who was shocked to be set apart from the crowd.

Suspect Aspergers?

So did we, and this checklist helped

Our son has Aspergers Syndrome. However, getting the diagnosis didn’t come easy and the path to that diagnosis was rocky to say the least. That was over 10 years ago and still the following checklist we received from our school district is the best heads-up to having Aspergers Syndrome that I’ve seen to date. It cuts to the chase.

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The following is only meant as a ‘checklist’. Remember, this is not an official document, and is only meant to act as a flag for a strong suspicion of Aspergers Syndrome, a doctor or trained therapist would need to make the official diagnosis.

However if you are looking for a guideline of sorts, it doesn’t get much better or black and white than the form below. It was spot on for us describing our son Sam. We’ve also put it in a downloadable format at the bottom. May it lead you towards illumination!                  -Jennifer Allen/Aspergers101

Look How Far We’ve Come Together!

Aspergers101 is dedicated to you. I created this resource through a reflection of my own need to gain daily information on raising my son diagnosed with Asperger Syndrome. After yearning to know why our son Sam divided so quickly from his kindergarten, 1st, 2nd and then 3rd grade classmates, we learned of a form of Autism called Asperger Syndrome. Once diagnosed, I quickly immersed myself in learning all I could about how my son functioned. What set him off, why the distance and most importantly, how we as a family could help Sam survive without us as we age.

Aspergers101 saved us really. In providing you with the daily information I craved so many years ago, it’s work kept the attention on you, your need all while working on Sam’s success. He became a strong advocate out of his own desire to shine light on a path less traveled. Sam has now taken the lead in workshops, conferences

and training to describe what it ‘feels’ like to have Autism. He is honest about the challenges but positive about the attributes. He has grown into a young man!

I’ve always said, don’t think of Autism as a weight, but a pair of wings in which to soar! – Sam Allen

It’s a success story yet you know as we fight for our children diagnosed with autism and ascend that steep hill at an exhausting pace, there comes a time, a moment, that we should pause our climb to look how far our child has come! This is one of those times.

L to R Charlie Allen, Samuel Allen and Jennifer Allen

 

Our younger son Charlie and I attended the Corporate Philanthropy & Non Profit Awards luncheon from the San Antonio Business Journal recently to support Sam as he was a finalist in the category of Volunteer of the Year for a Non-Profit. After the finalists were acknowledged and the winner, from a nearby table, was announced we relaxed and enjoyed the dessert before us. It was a total shock when, at the end of the luncheon, the “Spirit of Giving” Award was presented. As they began to describe the person of honor…it became apparent it was Sam! As he made his way to the stage a rousing standing ovation took place for a young man who was once told “you can’t….” by a doctor oh so long ago. They say it takes a village to raise a child with Autism…our village consists of God, a dedicated & selfless father like Herb, a supportive and protective brother with the heaping heart and soul that is Charlie, some very special educators and and handful of family and friends who are not afraid to embrace ‘different’ for all it’s glorious beauty.

Last question (to Sam) in the article: What advice do you have for someone who would like to get involved in a nonprofit? 

Just remember you are doing this for the good of the people. Seeing the smiles on their faces will pay off more than the money ever will. Be prepared to be a better person.” – Sam

There is such an instant bond with any family raising a child with special needs. A look of  “I get it, the challenges, loss and the euphoric highs at achievements deemed ordinary by neurotypicals”. In an instant this bond is acknowledged and suddenly you don’t feel so isolated. I want to reach out across the internet divide to thank you for allowing me to connect with you. You have been a huge part of my family’s journey and Sam’s moment of success!

by: Jennifer Allen

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The article was published on November 16th 2017 and written by Tricia Schwennesen, the Associate Editor of the San Antonio Business Journal.  Here is a link to the full story: https://www.bizjournals.com/sanantonio/news/2017/11/16/spirit-of-giving-samuel-allen.html

Choosing Your Child Over the Judgement of Others

Like many times in life, you come upon a fork in the road. One choice leads you down a certain path and the other choice leads you down a very different road. Finding out your child has autism is complex enough, but eventually we all come to the same fork in the road. Do I choose my child or do I choose to please the surrounding neurotypicals, those judgmental people around me?

This sounds simplistic, but parents realize almost immediately after the diagnosis that you are judged, alienated, and sometimes even rejected by your peers and perhaps even family. It hurts because you know your child cannot help the ‘tantrums’ when the baby in the grocery store won’t stop screaming. Or that your child’s complete lack of athletic skills will never match the soccer mom’s expectation of a friendly neighborhood soccer game. So eventually you and your child are excluded.

When these and many, many other similar situations would arise I realized my son would elicit these judgmental looks from people as a certainty because the autism was not going to be going away. So, we chose our child over others’ perceptions of what we should be.

As soon as our family as a unit took that path everything became easier! I no longer worried about others’ lack of knowledge when it comes to sensory issues or brain function. We as a family would have our own fun. Quirky doesn’t bother me anymore, in fact it’s almost cool and definitely a relief.

Together our family is a strong unit accepting and excelling in my son’s unique interests. Our family weekends are no longer with people that make for awkward or unforgiving situations, but we welcome anyone who would like to be with us just as we are! Now, many years later, the same families who alienated us for the differences, have surprisingly praised our strong family unit, ’hiccups’ and all!

By Jennifer Allen

Asperger Syndrome From Diagnosis to Independence Part 2: Social Development

San Antonio Public Library Informational Summer Series

This summer Aspergers101 hosted a free informational series on Aspergers at the San Antonio Public Library. We have recorded each of these valuable sessions in video and powerpoint format so that you can have access to them at any time. Below, watch the second workshop from our Informational Summer Series on Aspergers focusing on social development.

First, Jennifer and Sam Allen discuss important strategies for parents, professionals, and peers to utilize when socializing with those with Aspergers. Next, Louise O’Donnell, Ph.D. Neuropsychologist and Assistant Professor at UT Health Departments of Psychiatry and Pediatrics talks about the neurological aspects of social development for those with Aspergers and Autism.

The following are excerpts from Jennifer and Sam Allen’s powerpoint presentation on social development.