A Parent’s Perspective on Choosing your Child with Autism Over the Judgment of Others

Many times in our lives, we come upon a fork in the road. One choice leads you down a certain path and the other choice leads you down a very different road. Finding out your child has Autism is complex enough, but eventually we all come to a similar fork in the road. Do I choose my child, or do I choose to please the surrounding neurotypicals, those judgmental people around me?

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It sounds simplistic but we realized almost immediately after the diagnosis that you can be judged, alienated, and sometimes even rejected by your peers and perhaps even family.

Consistency is Comfort – Aspergers Family Relationships

While we, and the world in which we live, is always changing our Asperger child struggles with this uncertainty. How do we, as the parent help buffer the certainty of change with the challenge it brings to those living on the spectrum? This is a good question that affects many families, and poses discussion!

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Though we cannot control the world nor the small corner in which we live, we can somewhat control the space in which we call home.

Getting an ASD Diagnosis in Elementary School: A Crucial Window of Time

Going through the Kinder through third grade for my Aspergers son was by far our (and his) most difficult time. A perfect storm comes together for the parent, the teacher and especially the undiagnosed child on the higher end of the autism spectrum when beginning the school age years.

Kindergarten teacher reading to children in library

Often thrust into a social situation where no one has a clue that autism even exists can easily mask itself as bad behavior. This crucial window of time has been my inspiration to create Aspergers101 so that you can have more information at your fingertips than we did! The signs could come earlier if your child is in day-care or daily with other children. Although our son (who was our first) did show early signs…it didn’t become ‘in our face’ until he started public school.

Our Four Most Popular Blogs of 2016

We had a fantastic year of valuable content from all of our dedicated writers. Listed below are our four most popular blogs of 2016. Read these short introductions and click “Read More” to see the full blogs!

Aspergers is Not the Same as ODD (Oppositional Defiant Disorder)

By Marcia Eckerd

People with Asperger’s usually collect labels like ADHD, anxiety disorders, or bipolar disorder before they’re diagnosed with AS. The label that annoys me is Oppositional Defiant Disorder. Is there a difference between people whose Asperger’s-related behavior is misunderstood and ODD? I find that ODD is sometimes simply a description of behavior without a cause.

People with Aspergers Become Multi-Talented and Mentally Strong When They Expand Their Interests and Keep an Open Mind

By Reese Eskridge

Surely, anyone who has or works with Aspergers Syndrome has received encouragement of the idea that people with Aspergers and their closest acquaintances (i.e. parents and teachers) ought to discover and to nurture that ONE thing that they know or do best (…) As beneficial as they are, however, restricted interests do not always ensure that people with Aspergers achieve long-term personal development and sustenance. More specifically, restricted interests can take away from the ability to develop mental strength.

Alone Time for Teens with Aspergers is Crucial: Allow Them Their Space

By Jennifer Allen

Breathing room or ‘alone time’ is good for anyone, but for someone on the spectrum it is crucial. When Sam was very young I found myself, as his mother, wanting to arrange play dates with other children who were not exactly knocking on our door for playtime. My reasoning was he must be lonely, so I did everything in my power to elicit playmates. Offering the best snacks, coolest toys, or excursions to area attractions, but it didn’t take long before no one came around.

Aspergers, “The Twilight Zone”, and The Perception of Beauty

By Ken Kellam

Remember Ellie Mae on “The Beverly Hillbillies?” She was portrayed by Donna Douglas, in her day considered one of the most beautiful women on television. But she also once played a character who wasn’t so beautiful (…) In an episode of “The Twilight Zone” titled, “Eye of the Beholder,” Douglas portrayed a woman who was so ugly, she underwent an operation to make her less so (…) Obviously, her character was not inherently ugly, but she was simply born in the wrong world. That’s a dilemma similar to that which the Aspie faces.

Apart From the Crowd: Isolation in the Early Years of Diagnosis

Even before the official diagnosis of Asperger’s Syndrome, we knew our son Sam walked apart from the crowd. His early intense interest in a subject matter, and not in his peers, was the perfect mix for oddity starting the early sociable elementary years.

Aspergers Apart from the crowd

While we, as Sam’s parents, grew to walk alongside (and later celebrate) the unique perspective Sam had on the world, it was me who was shocked to be set apart from the crowd.

Ultimate Guide: Understanding High-Functioning Autism & Aspergers Syndrome

 The following is an excerpt taken from the documentary: Coping to Excelling: Solutions for School-age Children Diagnosed with High-Functioning Autism or Aspergers SyndromeMedical reports reveal a profound discovery in the brain of those with High-Functioning Autism. Studies with MRI imaging document an actual physical difference in some areas of the autistic brain verses that of a neuro-typical brain.

Neurological pathways fire differently in Asperger patients than that of a typical brain function. It has become clear that individuals who are diagnosed as High-Functioning Autistic or Aspergers receive their gifts and struggles from a physical medical basis not behavioral, as you may have been pressured to believe. Once we understand exactly how the challenges occur, we can begin to lead our loved ones with Aspergers on the path from coping to excelling.

We Need Your Help to Fund Our Statewide Driving with Autism Initiative

conference img 3Want to be a part of something big? Aspergers101 has come so far with our Driving with Autism initiative. Now we need to get the word out about the opportunities available for Texas drivers with Autism, and we need your help.

We’re raising funds for the awareness of the new Texas “Driving with Autism” initiative! This program informs and trains law enforcement on best practices for handling people with a Communication Impediment such as Autism, Aspergers, brain injury, Parkinson, deafness and in some cases, Down Syndrome.

Your contribution will help us place these informative brochures and posters into every high school, library, and Autism organization across the state. 100% of the funds raised will go toward printing and mailing costs. We have come so far but we are on our own in funding these crucial resources.

If you believe in what we do and would like to help Aspergers101 in our groundbreaking Driving with Autism initiative, please consider donating today.

To make a contribution go to our Facebook fundraiser:

https://www.facebook.com/donate/10207220018280772/

or our donation page:

Donate

A note from our founder and president, Jennifer Allen:

My son, Sam, has a form of High Functioning Autism called Aspergers Syndrome. We embarked on a program to help those with Autism and other communication impediments drive without fear from a law enforcement encounter. The Texas DPS responded by stepping up and providing “Communication Impediment with a Peace Officer” directly on your driver license or Texas ID.

In addition, we have teamed up to provide new Texas Trooper Recruits training when encountering those with Autism. It’s working! We are now in production for video reenactments showing what “Autism” may look like in a pull over situation. These will be made available to law enforcement state-wide!

Now we have brochures and posters outlining how to get the new driver license restriction code, as well as informative tips from Autistic expert, Dr. Temple Grandin. These will be distributed to High Schools and education centers (free) statewide.

We need help in raising funds for video production for Texas Trooper training, as well as printing and distribution of the posters and brochures statewide. For these costs we are on our own. For more information on the “Driving with Autism” program, including a full video of our announcement from the Texas State Capitol Press Room please go to: https://aspergers101.com/media/

Thank you!

Initiatives to Help Texas Drivers with Communication Challenges

April Press Release

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FOR IMMEDIATE DISTRIBUTION PRESS RELEASE
April 25, 2016 Media and Communications Office

Initiatives to Help Texas Drivers with Communication Challenges

AUSTIN – The Texas Department of Public Safety (DPS), along with the Texas Governor’s Committee on People with Disabilities and Aspergers101, today announced initiatives designed to assist Texans who have communication impairments. In an effort to facilitate effective communication, DPS first reminded Texans of the communication impediment option that drivers may select to be reflected on their driver licenses/ID cards.

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(L to R) Mr. Joe Peters/Asst Director Texas DPS Driver License Division, Major Jason Hester/Texas DPS Education, Training Division, Jennifer Allen/CEO Aspergers101, Samuel Allen/Aspergers101 and speaking, Mr. Ron Lucey/Executive Director Texas Governors Committee on People with Disabilities.

DPS also announced that it has recently coordinated with Aspergers101 to allow them to provide training and education to DPS officers about autism spectrum disorders, other disabilities and potential communications challenges associated with those disorders. In addition, the department announced that it is working with Aspergers101 to develop a Driving With Autism camp that will help increase driver confidence and practical skills.

“At DPS, our mission is to serve and protect the people of Texas,” said DPS Assistant Director for the Driver License Division Joe Peters. “This optional notice on the driver license and ID card puts important information in the hands of our law enforcement officers, which will help them better serve and protect individuals with a communication impediment.”

Suspect Aspergers?

So did we, and this checklist helped

Our son has Aspergers Syndrome. However, getting the diagnosis didn’t come easy and the path to that diagnosis was rocky to say the least. That was over 10 years ago and still the following checklist we received from our school district is the best heads-up to having Aspergers Syndrome that I’ve seen to date. It cuts to the chase.

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The following is only meant as a ‘checklist’. Remember, this is not an official document, and is only meant to act as a flag for a strong suspicion of Aspergers Syndrome, a doctor or trained therapist would need to make the official diagnosis.

However if you are looking for a guideline of sorts, it doesn’t get much better or black and white than the form below. It was spot on for us describing our son Sam. We’ve also put it in a downloadable format at the bottom. May it lead you towards illumination!                  -Jennifer Allen/Aspergers101

A Beautiful Mind

IMG_6909In 2001 Film Director Ron Howard released “A Beautiful Mind” to the public, and I was one of the first to attend. After all, actor Russell Crowe portrayed the great Nobel Peace Prize winner John Nash, and I knew I was in for a great film.

By the time the second scene rolled out I was painfully frozen as the character (portrayed to perfection) John Nash was so strikingly similar to my son Sam, in both action and peer reaction.

The tears began to flow.