Aspergers101 is dedicated to you. I created this resource through a reflection of my own need to gain daily information on raising my son diagnosed with Asperger Syndrome. After yearning to know why our son Sam divided so quickly from his kindergarten, 1st, 2nd and then 3rd grade classmates, we learned of a form of Autism called Asperger Syndrome. Once diagnosed, I quickly immersed myself in learning all I could about how my son functioned. What set him off, why the distance and most importantly, how we as a family could help Sam survive without us as we age.
Aspergers101 saved us really. In providing you with the daily information I craved so many years ago, it’s work kept the attention on you, your need all while working on Sam’s success. He became a strong advocate out of his own desire to shine light on a path less traveled. Sam has now taken the lead in workshops, conferences
and training to describe what it ‘feels’ like to have Autism. He is honest about the challenges but positive about the attributes. He has grown into a young man!
I’ve always said, don’t think of Autism as a weight, but a pair of wings in which to soar! – Sam Allen
It’s a success story yet you know as we fight for our children diagnosed with autism and ascend that steep hill at an exhausting pace, there comes a time, a moment, that we should pause our climb to look how far our child has come! This is one of those times.
Our younger son Charlie and I attended the Corporate Philanthropy & Non Profit Awards luncheon from the San Antonio Business Journal recently to support Sam as he was a finalist in the category of Volunteer of the Year for a Non-Profit. After the finalists were acknowledged and the winner, from a nearby table, was announced we relaxed and enjoyed the dessert before us. It was a total shock when, at the end of the luncheon, the “Spirit of Giving” Award was presented. As they began to describe the person of honor…it became apparent it was Sam! As he made his way to the stage a rousing standing ovation took place for a young man who was once told “you can’t….” by a doctor oh so long ago. They say it takes a village to raise a child with Autism…our village consists of God, a dedicated & selfless father like Herb, a supportive and protective brother with the heaping heart and soul that is Charlie, some very special educators and and handful of family and friends who are not afraid to embrace ‘different’ for all it’s glorious beauty.
Last question (to Sam) in the article: What advice do you have for someone who would like to get involved in a nonprofit?
Just remember you are doing this for the good of the people. Seeing the smiles on their faces will pay off more than the money ever will. Be prepared to be a better person.” – Sam
There is such an instant bond with any family raising a child with special needs. A look of “I get it, the challenges, loss and the euphoric highs at achievements deemed ordinary by neurotypicals”. In an instant this bond is acknowledged and suddenly you don’t feel so isolated. I want to reach out across the internet divide to thank you for allowing me to connect with you. You have been a huge part of my family’s journey and Sam’s moment of success!
by: Jennifer Allen
The article was published on November 16th 2017 and written by Tricia Schwennesen, the Associate Editor of the San Antonio Business Journal. Here is a link to the full story: https://www.bizjournals.com/sanantonio/news/2017/11/16/spirit-of-giving-samuel-allen.html
Like many times in life, you come upon a fork in the road. One choice leads you down a certain path and the other choice leads you down a very different road. Finding out your child has autism is complex enough, but eventually we all come to the same fork in the road. Do I choose my child or do I choose to please the surrounding neurotypicals, those judgmental people around me?
This sounds simplistic, but parents realize almost immediately after the diagnosis that you are judged, alienated, and sometimes even rejected by your peers and perhaps even family. It hurts because you know your child cannot help the ‘tantrums’ when the baby in the grocery store won’t stop screaming. Or that your child’s complete lack of athletic skills will never match the soccer mom’s expectation of a friendly neighborhood soccer game. So eventually you and your child are excluded.
When these and many, many other similar situations would arise I realized my son would elicit these judgmental looks from people as a certainty because the autism was not going to be going away. So, we chose our child over others’ perceptions of what we should be.
As soon as our family as a unit took that path everything became easier! I no longer worried about others’ lack of knowledge when it comes to sensory issues or brain function. We as a family would have our own fun. Quirky doesn’t bother me anymore, in fact it’s almost cool and definitely a relief.
Together our family is a strong unit accepting and excelling in my son’s unique interests. Our family weekends are no longer with people that make for awkward or unforgiving situations, but we welcome anyone who would like to be with us just as we are! Now, many years later, the same families who alienated us for the differences, have surprisingly praised our strong family unit, ’hiccups’ and all!
By Jennifer Allen
This summer Aspergers101 hosted a free informational series on Aspergers at the San Antonio Public Library. We have recorded each of these valuable sessions in video and powerpoint format so that you can have access to them at any time. Below, watch the second workshop from our Informational Summer Series on Aspergers focusing on social development.
First, Jennifer and Sam Allen discuss important strategies for parents, professionals, and peers to utilize when socializing with those with Aspergers. Next, Louise O’Donnell, Ph.D. Neuropsychologist and Assistant Professor at UT Health Departments of Psychiatry and Pediatrics talks about the neurological aspects of social development for those with Aspergers and Autism.
The following are excerpts from Jennifer and Sam Allen’s powerpoint presentation on social development.
This summer Aspergers101 hosted a free informational series on Aspergers at the San Antonio Public Library. We have recorded each of these valuable sessions in video and powerpoint format so that you can have access to them at any time. Below, watch the first workshop from our Informational Summer Series on Aspergers focusing on diagnosis in childhood. First, Jennifer and Sam Allen discuss the initial steps of recognizing signs of Autism in a child and seeking a diagnosis. Next, Berenice de la Cruz, Ph.D., BCBA-D and COO of Autism Community Network, gives details on the diagnosis process and the medical terminology behind Autism and Aspergers.
The following checklist for Autism and Asperger behavioral signs comes from Jennifer and Sam’s powerpoint. This checklist is not meant to be used as a professional or standalone diagnosis, but rather as a helpful guide that can support you in your journey of diagnosis for your child.
Going through the Kinder through third grade for my Aspergers son was by far our (and his) most difficult time. A perfect storm comes together for the parent, the teacher and especially the undiagnosed child on the higher end of the autism spectrum when beginning the school age years.
Often thrust into a social situation where no one has a clue that autism even exists can easily mask itself as bad behavior. This crucial window of time has been my inspiration to create Aspergers101 so that you can have more information at your fingertips than we did! The signs could come earlier if your child is in day-care or daily with other children. Although our son (who was our first) did show early signs…it didn’t become ‘in our face’ until he started public school.
If you haven’t seen it, here is “Asperger’s High”, a mock drama situated around a fictitious sitcom as seen on youtube.
Sam and Jennifer interview its very talented co-writer and actress, Leslie Tsina, below. Tsina talks about the making of the mock drama “Aspergers High” with some behind-the-scene tidbits, reactions from the autism community and her future projects.
Jason Axinn, our director:
Ben Siemon www.bensiemon.com/twitter: @benjaminjs
Having a son with Aspergers Syndrome is always a learning curve. I haven’t had a living template from which to go by. Every small milestone in Sam’s young life has seemed so much larger hurdling than it was in mine or my husband’s life.
So as we approached the driver’s education opportunity in high school, we rolled up our sleeves and got busy in research. Though gifted with a high intellect, oftentimes those with Aspergers Syndrome or High functioning Autism are 2 to 3 years behind on an emotional level. Emotions often play into driving (ie…people with road rage) so I took that into account when Sam approached the typical 16 year old age of driving.
Many times in our lives, we come upon a fork in the road. One choice leads you down a certain path and the other choice leads you down a very different road. Finding out your child has Autism is complex enough, but eventually we all come to a similar fork in the road. Do I choose my child, or do I choose to please the surrounding neurotypicals, those judgmental people around me?
It sounds simplistic but we realized almost immediately after the diagnosis that you can be judged, alienated, and sometimes even rejected by your peers and perhaps even family.
While we, and the world in which we live, is always changing our Asperger child struggles with this uncertainty. How do we, as the parent help buffer the certainty of change with the challenge it brings to those living on the spectrum? This is a good question that affects many families, and poses discussion!
Though we cannot control the world nor the small corner in which we live, we can somewhat control the space in which we call home.